Hilary Cass was actively impeded from doing a follow-up study of Tavistock children by adult gender clinics who wouldn’t co-operate.

[ChristinaXYZ]

Important point from novelist Simon Edge

https://twitter.com/simonjedge/status/1778000213149377015

"Hilary Cass was actively impeded from doing a follow-up study of Tavistock children by adult gender clinics who wouldn’t co-operate. She believes this stunning refusal was co-ordinated and ideologically driven. All credit to
Amelia Gentleman in the Guardian for this revelation"

Full quote in image on twitter

https://twitter.com/simonjedge/status/1777983256224210993/photo/1

https://www.telegraph.co.uk/news/2024/04/10/nhs-bosses-ordered-reveal-fate-of-young-trans-patients/

Behind a paywall but

"The NHS must reveal the fate of 9,000 transgender young people treated by the controversial Tavistock clinic, the Health Secretary has said in the wake of the Cass review.
The landmark report published on Wednesday found adult gender clinics had refused to disclose whether transgender people who started their treatment as children later changed their minds about transitioning, or went on to suffer serious mental health problems.
Victoria Atkins, the Health Secretary, met Amanda Pritchard, the chief executive of NHS England, on Wednesday to tell her “nothing less than full co-operation by those clinics in the research is acceptable”.

Also

"The Telegraph understands that NHS England has now written to the chief executives of the hospital trusts that operate the adult clinics demanding that the data is handed over as well as instructing an end to appointments for under-18s. The health service will also undertake an external review of all its transgender services."

Well it looks to me like, by refusing to provide the data, its backfired and they will be subject to far greater scrutiny e.g. not just the results of the children-to-adult services data, but of the whole service. D'oh

Rainbowshit · Yesterday 17:49

This is utterly shocking. It leads to the conclusion that they know they have harmed patients and are trying to cover it up.

I agree, it's the only logical conclusion.

NotBadConsidering · Today 00:40

Amelia Gentlemen didn’t “reveal” it. It’s in the Report!

That's correct, but:

It's in the Guardian!

I'll celebrate that!

Many meltdowns on Facebook. Or rather people desperately trying to say that medicalising their children was really the only reasonable option to ‘miserable teens’.

Exactly - and implies they have something to hide.

Forgive me if I'm wrong, but surely an NHS clinic should be willing and able to have all patient records audited and examined when the government calls for it? What authority did Cass have in conducting her review? Was she asked to do this by the government? The NHS?

Was she asked to do this by the government? The NHS?

As explained elsewhere it was logical to look at the adult services as many using them had come from youth services.

And to have evidence from the adult services would be part of the assessing the outcomes of the youth services.

Yes. Thanks, I've not been able to fully engage with the reports and explanations.

@BiologicalKitty Perons within the Tavistock GIDS service blew the whistle, and there was the Kiera Bell case who was a detransitioner, which went to Court.

The Care Quality Commission decided to do an audit and rated the service inadequate.

NHS England then commissioned the CASS review.

Politicians not involved.

The press are on this. The Telegraph exposing the names of these "doctors" who have deliberately concealed patient data:

https://www.telegraph.co.uk/news/2024/04/11/top-nhs-adviser-trans-health-failed-cooperate-cass-review/

Dr Derek Glidden, its clinical director, refused to comply despite being NHS England’s gender dysphoria national speciality adviser.
He chairs the NHS England Clinical Reference Group on gender dysphoria, while another of its five members, Dr Laura Charlton, the clinical lead at Leeds Gender Identity Clinic, also refused to participate in the research.
The Nottingham clinic has been key to the rollout of a new wave of experimental trans services being set up across the country. It has links to the Indigo Gender Service in Greater Manchester, which describes itself as “trans and non-binary led”, and to the recently launched scheme in Sussex which has put GPs in charge.

What a surprise, said absolutely no-one that this is happening at Notts, especially given the connection with Indigo Manchester.

There's something rotten in Denmark.

Archive link to bypass the paywall

https://archive.ph/b7DGk

Absolutely observing the fact that you WOULD have to go through the ethical approval process for such a trial was by no means meant to imply that I thought it a given that they successfully could. I'm not entirely sure they could pass the first hurdle of getting someone to fill in the forms and put their name on it.

These fuckers need to be held to account. I have a 21 year old trans identifiying child and for the last two years I've been discouraging him from going to the GP when he's ill. On one occasion, when he needed anti-depressants, I tried to get a private assessment from a gender exploratory psychiatrist because I couldn't trust the NHS not to affirm the gender identity and refer him to these absolute ghouls.

I cannot overstate how angry I am, how much I want to see a public enquiry and how much I'd like to see people put in prison over this shit.

I will be fascinated to see what NHS England actually does.

Will the whole of the Clinical Reference Group for Gender Dysphoria resign? How replaceable are they? Will others agree to take it on? Who else is available other than the clinical leads for the clinics?

Will people keep their roles after what? Education?

Steven Whittle on Xitter is encouraging all patients to refuse permission to have their data to be shared.

I advise ALL GIC clinic patients (including PAST) patients who do not wish their data to be used in this way to write to their GIC a short letter stating

“I do not give my permission for any aspect of my patient data to be submitted to, or collected for, the purpose of any research without my express permission in writing being obtained in advance”.

Does he have point though on that thread, is the study just about linking previous GIDS patients with a GRC to evidence a successful transition?

“Don’t let them find out how unhealthy you are or we’re all fucked.”

The Sword of Damocles dangling over them is how I’ve heard it described…

Not only that, but that there is next to no follow up information on patients nor automatic re-calls of the sort usually standard and routine in other areas of speciality and treatment in the NHS.

They are working within the context of a health service and yet pursuing an affirmation only/trans is not a medical condition approach - plus it is a patient led, 'on demand' service. The only non medical 'condition' which requires medical intervention.

Steven Whittle on Xitter is encouraging all patients to refuse permission to have their data to be shared.

I doubt anyone is startled by Whittle's indifference to transparency and an evidence base. Whittle openly acknowledged that Press for Change succeeded beyond their greatest dreams by operating in the shadows (Denton should take a bow, of course). Some people just want to watch the world burn no matter what the cost to others.

PFC were consulted on changes to the Sex Discrimination Act in 1999. Women were not. Let that sink in. Women were not consulted on changes to the Sex Discrimination Act

PFC were talking about self-ID in 2000
Also in 2000 PFC were talking about an ultimate goal of just not recording sex

PFC were actively consulted (as in, invited to meetings in government departments and sent confidential drafts of reports for feedback) from the earliest stages of the work that resulted in the GRA.

https://www.mumsnet.com/talk/womens_rights/3463920-Lets-go-back-to-2007

https://www.youtube.com/watch?app=desktop&v=5ZmEunu32uo

Whittle has really gone mask off more recently. All nicey nicey I'm so reasonable when it was backroom gentlemen's agreements, now that what was and is happening and how is getting daylight, Whittle can't contain they's narcissistic rage.

Is it even possible to refuse consent after the fact in this way, if patient data is anonymised before being shared with researchers? I suppose it depends on what a patient consented to in the first place, re data use?

I'm just musing whether this is a scab that Whittle (or any TRA) would be wise to pick at - if you are saying these patients agreed to the NHS having their data and now don't, is that on the ground that they didn't know or understand what they were agreeing to, at the time? And if so, are you opening a window on what else they agreed to at that time, without knowing or understanding what they were agreeing to?

Also from MrsOvertonsWindow's Telegraph story:

Just one of the seven units across the country – the Laurels Gender Identity Clinic in Exeter – agreed to supply any evidence.

On the eve of publication of the Cass Review, NHS England’s national director of specialised commissioning wrote to NHS hospital leaders operating adult clinics, telling them that “mandatory action” would be taken if clinics did not comply.

I'm glad to see that they will be forced to be forthcoming.

RebelliousCow · Today 11:24

Not only that, but that there is next to no follow up information on patients nor automatic re-calls of the sort usually standard and routine in other areas of speciality and treatment in the NHS.

I know, it's barmy, isn't it? Can you imagine them doing that with cardiac, or cancer patients, saying, "Well, they've got their tablets / had their chemo, all is well. Bye"? Not a bit of it.

They are working within the context of a health service and yet pursuing an affirmation only/trans is not a medical condition approach - plus it is a patient led, 'on demand' service. The only non medical 'condition' which requires medical intervention.

The mental gymnastics they must perform, in order to say that drugs and surgery are not a medical condition is staggering. They say it's not a mental disorder, but that if they don't get PBs & hormones, they'll commit suicide, but that that isn't indicative of poor mental health. Nor the fact that, if they honestly believe that they are the opposite sex, that something is rather wrong with their thought processes.

That's not to castigate people with genuine dysphoria.