I’d never heard of this until really recently. Have I been living under a rock? I’m on iron tablets, but they’re not really working. I was asking AI to help me plan a response to GP, as they were saying because I don’t have syncope yet, they won’t refer me for more iron investigations/treatment and I just have to wait however many years until my periods stop. I’m feeling a bit desperate. AI mentioned PBAC.
My score to date for this period is 484, but I’m near the end. Ferritin has been pushed up to high teens, but I’m still very symptomatic.