endometriosis help / solidarity out there?

[seasaltwater]

This is an utter pity post but I'm hoping there are some kind people out there just to validate.

I have endo (stage IV / everywhere). I have had it for ages. Recently found out I have a regrown endo cyst (chocolate cyst) on my ovary. the pain is kind of manageable. What I hate is the nausea, fatigue, dizziness, leg pain, constipation, bloating. Today I had to leave work early because I felt like I was going to faint and my blood pressure and heart rate were on the floor. Tomorrow I have a really important work meeting first thing which I need to be at my best for and I just know i'm not going to be (my period is due tomorrow/day after).

F*CCCCKKK it all. any kind words?! I'm in bed, with hot things and all the medication and Hinterland (grim TV to match grim mood) and for now my toddler is at least asleep.

Ah I’m really sorry you are having a mare of it, many hugs.

My boss has endo and all they’ve offered her in substantial treatment is a hysterectomy in early 30’s when she really wants a baby. Awful how it’s treated.

oh thank you for replying - much appreciated :) . Yeh treatment is just not great. Like your manager, I also want a child (have one, desperately want a 2nd). Everytime I go to GP or Gynae they push for hysterectomy or taking medication to put my body into menopause. Every month I just can't quite believe that this illness causes so much f*cking hassle. And that doctors dont even really know why people get it, whats the cause or how to treat it.

I feel your pain, I've got endometriosis too, it's the most painful thing I've ever known, I've been through the it's just your period etc, the pain is so bad I can't get out of bed during a flare.

Solidarity sis

Just to add - I feel your pain too. I was 9 years from first agonising pain to diagnosis ( and surgery) which was the most enormous relief for 10 months til it came back...
It is awful given how treatable it is that we are still left to suffer. You have all my sympathy.