Anyone had experience with PID infection?

[Cupcake5991]

Hi I was wondering has anyone had experience with Pelvic inflammatory disease? I’ve had this infection for a few months and it’s very slow to clear even after 2 rounds of antibiotics? Is this normal? It seems to be a really stubborn infection, because only now I’m feeling slightly better on 3rd week of antibiotics. But somehow I feel like I’m gonna need more :(

Anyone else had similar experiences? I have been feeling really run down over it and I’m too embarrassed to confide in friends/family

Thank you to anyone that reads this🙏🏻

Bit late and not really an answer but I am currently being tested for this horrible disease too! I hope you’re doing better now? The pain has been so severe, waiting for my swab results feels like a lifetime

After 3 a&e visits I was admitted for IV antibiotics last month, I was in for 4 days. I'd been on antibiotics every few weeks since August as no-one took it seriously. I think the infection is gone (fingers crossed) but I'm still in pain every day & waiting for a diagnostic laparoscopy. The best thing you can do is get a referral to the nearest emergency gynae clinic. GPs & A &E don't have a clue.

All A&E did was prescrbe oramorph, after I'd begged for better pain relief than paracetamol. The gp just kept giving me the same 2 antibiotics every time. It's difficult to diagnose & doesn't always show on swabs or in blood tests or ultrasounds, so it's difficult to get the right treatment.

@CrazyCatLady13 no they really don’t have a clue. Ended up in a&e yesterday after excruciating pain, they seem to think either a burst cyst/endometriosis or PID. My blood results came back clear though with no infection so she kind of ruled PID out… the symptoms are just so similar though.

Do you think the pain you still have is related or something different?

I think I might have endometriosis. The PID started a few days after I had a mirena coil replaced. I had infection symptoms including a high temperature, low blood pressure, high heart rate but no infection in the blood. Half the doctors said PID, half said it wasn't! The only high marker was for inflammation. As I haven't had infection symptoms in a month, and the pain has eased a lot, I'm hoping the infection has gone. I was on 3 different antibiotics by IV.

I think the coil masked the endometriosis until it was removed during the first attack & the PID was due to the coil. I'm not having another coil ever!

The only way to be sure it's PID is a laparoscopy during an attack.

Oh wow that’s interesting. I thought they could diagnose PID through the swabs. Hope you get some answers to whether it’s endo or not. Constant pain is exhausting!

I have my laparoscopy booked for next week - fingers crossed I'll get answers

Ensure as far as possible that your lap operation is not solely a diagnostic one. If endometriosis is found it needs dealing with there and then rather than undergoing yet more surgery.

You should also have a follow up appointment to discuss the lap operation findings. Do not let them tell you this information in the recovery room because this is poor practice.

@AttilaTheMeerkat

Ensure as far as possible that your lap operation is not solely a diagnostic one. If endometriosis is found it needs dealing with there and then rather than undergoing yet more surgery.

You should also have a follow up appointment to discuss the lap operation findings. Do not let them tell you this information in the recovery room because this is poor practice.

Thank you, I'll try to make sure they'll deal with anything they find. I'm terrible after anaesthetic so will check that I get a follow up appointment to discuss it all.

Hi all - can anyone share outcomes of dealing with PID and getting a diagnosis via laparoscopy? Are they able to culture the infection and pin point the right drugs for instance?