Page 3 | Side effects SOS

Lolly2803 · 2025-04-05T18:08:23+00:00

Hi, I lied to get mounjaro as I do have some weight to lose. Took my first dose on Thursday. Today I haven’t been able to leave my bed. Severe diorrhea, tummy cramps, had a rash on my forearms and I’ve got horrid burps. I’ve been on the loo all day. When will this end. I feel horrific. When will it end?

ILoveMJ · 07/04/2025 12:05

Herewegoagainandagainandagain · 07/04/2025 12:03

Yes the NHS is there for all and hopefully will remain there for a long time to come. It doesn't change the undeniable fact that your actions to obtain prescription only medication, illegally bypassing the protections in place, are reckless. 🤷‍♀️

🙄 you really don't understand and I don't think ever will. Which is a shame.

ILoveMJ · 07/04/2025 12:13

Herewegoagainandagainandagain · 07/04/2025 12:03

Yes the NHS is there for all and hopefully will remain there for a long time to come. It doesn't change the undeniable fact that your actions to obtain prescription only medication, illegally bypassing the protections in place, are reckless. 🤷‍♀️

If you had the choice would you rather I continued without mounjaro and ended up using NHS mental health services (due to the distress I felt at my weight and the exhaustion I experienced in battling the daily food noise and over exercise) and physio (from the over exercise I felt I had to engage in to control my weight) and possible services related to future medical complicstions resulting from being overweight.

Or would you rather I used mounjaro at my own expense, felt better about myself, attained a healthy weight and never used any NHS services in future?

Because the former was my trajectory and the latter is my new reality.

ILoveMJ · 07/04/2025 12:21

Sorry to have de-railed slightly your thread OP. Hope you are now feeling better and you managed the coffee ok 💐

Herewegoagainandagainandagain · 07/04/2025 12:37

ILoveMJ · 07/04/2025 12:05

🙄 you really don't understand and I don't think ever will. Which is a shame.

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I do understand and sympathise, but do not agree. Access to high risk pharmaceutical interventions are there to protect and prevent harm.

Otherwise we would put all medicines on the shelves in the chemists and allow everyone free access and let them google to make their decisions.

ILoveMJ · 07/04/2025 12:50

Herewegoagainandagainandagain · 07/04/2025 12:37

I do understand and sympathise, but do not agree. Access to high risk pharmaceutical interventions are there to protect and prevent harm.

Otherwise we would put all medicines on the shelves in the chemists and allow everyone free access and let them google to make their decisions.

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It's ok to disagree. A lot of people disagree with others choices when they are not walking in their shoes. The guidelines are there for a reason, as you say, and I have chosen to break the rules and go against the guidelines. People don't usually think highly of such decisions. Though thanks for understanding, possibly, why people might make those decisions.

Mysticmaiden · 07/04/2025 18:42

ILoveMJ · 07/04/2025 09:47

What on earth makes you think a 'genuine obese user' finds exercise and diet harder than me or anyone else? Unless you have medically tested and rigourously established everybody's food noise, hunger levels, activity, metabolism, hormones, reactions to advertising, smell and taste senses etc.. etc.. etc.. then you simply don't know what you r talking about.

A lot of people struggle enormously with losing weight and keeping it off with diet and exercise alone. I have been on what feels like every diet that has ever existed, starting at age 8. I'm now 47. I have over-exercised including running to and from work, using the work gym in the morning before work after my first run, and running again in the evening when I was in my twenties (that's 3 runs and a gym session every single day), just to stop myself becoming overweight. I have tried fasting (starving myself basically, let's call it what it is), purging, Atkins, the orange and coffee diet, low carb, low calorie, vegan, vegetarian, clean eating, everything. For years and years and years I have battled constant food noise and hunger and thoughts about calories. I know the calorie in absolutely any food you could name. I'm exhausted.

When I started mounjaro I was around BMI 27. I am now in the healthy weight range. Mounjaro has changed my life. I can exercise at sensible levels and eat healthily without the internal mental struggles, food noise and everything else. I don't have to kill myself with two or three workouts a day just to stay at a healthy BMI. I feel normal. I feel like moderation is nice. I feel rejuvenated and happy.

I like how I look. I like that I am no longer mentally and physically exhausted with trying to loose weight. I am happy. I don't have to track my calories all day every day. I can just relax and enjoy life.

A LOT of people struggle with weight. You cannot tell simply by looking at someone or seeing their BMI what they are going through. We should all support each other.

You seem to think dropping 5lbs is easy. You say you've done it in 5 weeks! That's great. Why didn't you do it again, and again, and again til you lost the weight you needed to? ... because it's not that easy is it. We all know that. We know it's harder than it sounds, especially to keep it off. Instead of expecting others to do what you cannot do because you think they are somehow biologically more able than you, perhaps try being more supportive and recognise that maybe other people share your struggles. Just because someone else doesn't have the same weight or medical difficulties as you, doesn't mean everything comes easier for them.

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Wow triggered much 🙈

I need mounjaro because of what I put in my post, you clearly chose to omit it in ypur response to try to justify your triggered response. I'm insulin resistance...and I was obese so I was clinically and legally prescribed the drug. I also have immediate family with diabetes and I was pre diabetic. I also have diagnosed inflammatory conditions. Losing 5lbs had no impact on my inflammatory conditions and my insulin resistance, I suffered with unstable blood sugar symptoms for over a decade. Mounjaro has corrected it so I definitely needed it.

I note that you said you were around bmi 27, you either are or you aren't and either way you need to be bmi 30 or above to use it, not "around 27" with no listed comorbidity.

So you can moan and argue against my point until you're blue in the face but legally those who are under bmi 27 without an associated comorbidity or approved health condition should not be taking it legally. To lie and take it is illegal and commiting an offence.

AprilMadness · 07/04/2025 19:42

Don't beat yourself up OP. It was silly to
lie to the provider and you've had an extreme reaction.

For what it's worth I've been on MJ for about 6 months and lost 4 stone never had one negative side effect. And was very smug tbh.

Until this week! My BMI is now 21, took an injection on Friday night and on Sunday ... jeez. Projectile vomited in the toilet when I went out for a meal. And was sick twice during the night. As well as terrible diarrhoea.

Today have now stopped being sick but still have dodgy tummy. And feeling very sorry for myself.

No idea why I reacted so badly this time, wasn't even a higher dose.

So it can happen to anyone at any time.

Glad you feel better today.

Original poster

Lolly2803 · 07/04/2025 19:45

aw that’s no fun. Well done on the weightloss and really hope you feel better. I’m feeling ok now but I’ve got an awful aching pain under my right ribcage. Can’t get comfy, I’ve taken paracetamol but hasn’t made any difference.

OP posts:

MissMarplesNiece · 07/04/2025 19:52

Pain under right side of ribcage could be a gall bladder problem.

LyndzB · 07/04/2025 19:54

yes I thought gallbladder too. Have you had any high fat food? Even the healthy kind - nuts/avocado?

ILoveMJ · 07/04/2025 19:55

Thanks for your reply.

I have agreed it was morally wrong to lie by adding a few kgs to my weight on the online form! But I don't regret it. It was an ethical dilemma, sure. But ultimately it was just that, an exercise in ethics. Given I try my best to be a pretty decent human in all other aspects of my life, and have done for the last 47 years, I thought sod it! Why not please myself for a change! Do what's right for me. And it's paid off :) Mounjaro has been completely life changing for me :) I can't tell you how incredible this drug has been for me. And I've probably saved the NHS ££ in mental health costs and future physical health costs as a result. So what's the damage?

igivein · 07/04/2025 19:56

@Lolly2803 I don’t want to be ‘that’ poster, but the pain (plus the vomiting) could be pancreatitis, which is a known, but rare, problem with MJ.
It’s probably worth a call to nhs direct just to be on the safe side.
Hopefully it’s just a pulled muscle from all the vomiting.

ILoveMJ · 07/04/2025 19:57

Lolly2803 · 07/04/2025 19:45

aw that’s no fun. Well done on the weightloss and really hope you feel better. I’m feeling ok now but I’ve got an awful aching pain under my right ribcage. Can’t get comfy, I’ve taken paracetamol but hasn’t made any difference.

Oh no, sorry to hear that :( Probably would be a good plan to see the doctor💐

Original poster

Lolly2803 · 07/04/2025 19:58

I haven’t actually vomitted I just had severe diorrhea. Literally every half an hour for 24 hours. Sorry for the info!

Can one dose really cause that? I’ll look it up. It’s just like an ache pain, like I can’t get comfy either with it.

OP posts:

CheeseNcrackerz · 07/04/2025 20:11

OP I’m allergic to mounjaro. Not with constant diarrhoea but I’ve tried it twice (stupidly - fully understand the desperation for this to be the thing that makes you lose the weight) and both times I had reactions.

the second time I tried it, I took over the counter allergy meds the whole time, anticipating some sort of reaction that I’d hope would go away after a time.I took 3 injections of 2.5mg and my lips were tingling with hives all over my body by the third dose. I ended up speaking to the gp and was prescribed 2 different anti histamines I couldn’t get over the counter and that cleared it quickly. Honestly call the gp and get the help you need. Until I did I felt like I had no control of my body. Hugs it’s shit! And I’m still fat 🤣

ILoveMJ · 07/04/2025 20:15

ILoveMJ · 07/04/2025 19:55

Thanks for your reply.

I have agreed it was morally wrong to lie by adding a few kgs to my weight on the online form! But I don't regret it. It was an ethical dilemma, sure. But ultimately it was just that, an exercise in ethics. Given I try my best to be a pretty decent human in all other aspects of my life, and have done for the last 47 years, I thought sod it! Why not please myself for a change! Do what's right for me. And it's paid off :) Mounjaro has been completely life changing for me :) I can't tell you how incredible this drug has been for me. And I've probably saved the NHS ££ in mental health costs and future physical health costs as a result. So what's the damage?

Sorry that was meant for @Mysticmaiden but I forgot to quote ...

Original poster

Lolly2803 · 07/04/2025 21:00

Your message made me laugh but seriously I hope you’re ok. I haven’t had hives etc but I’ve only done one dose. Had a rash on my arms though. I won’t ever take it again, not worth risking anything and I felt so awful for me it’s just totally not worth it!

OP posts:

GameOfJones · 08/04/2025 09:08

@Lolly2803 does anyone live with you and do they know you've taken it? I just wanted to check you are ok and have support in real life.

Sounds like you are feeling a bit better now luckily. If you can bear it, try nibbling on half a slice of dry toast or some salted crackers and keep having sips of water. You may want to get some electrolytes/rehydration sachets to put in water.

I'm not surprised that it hit you badly if you have less body fat for the medication to be stored in but sounds like you have definitely learned your lesson the hard way! Thanks for posting this as I do think it's a helpful warning to others considering doing the same and fudging their stats to get medication that they shouldn't.

Hope you're feeling much better very soon.

Herewegoagainandagainandagain · 08/04/2025 11:32

@GameOfJones

I'm not surprised that it hit you badly if you have less body fat for the medication to be stored in

This is untrue. Mounjaro is not fat-soluble and is not stored in body fat. The amount of body fat a person has does not determine how the medication will affect them.

It's not prescribed to people with a lower BMI because, the potential risks outweigh the benefits - not because of how it's stored or processed by the body.

MissMarplesNiece · 08/04/2025 12:02

Hope you're feeling better now OP and that the pain you had has either gone or that you've had it checked out by a medic.

Answers on this thread have made me wonder about those people who take Munjaro for maintenance. Aren't they now going to be subject to the same risks as those with BMIs below the threshold level and who cannot get it prescribed even privately?

Herewegoagainandagainandagain · 08/04/2025 13:22

MissMarplesNiece · 08/04/2025 12:02

Hope you're feeling better now OP and that the pain you had has either gone or that you've had it checked out by a medic.

Answers on this thread have made me wonder about those people who take Munjaro for maintenance. Aren't they now going to be subject to the same risks as those with BMIs below the threshold level and who cannot get it prescribed even privately?

Again, the risks are no different. The risk is balanced between the very real health risks (such as death!) of obesity and the risks of the medication.

The health risks of being "just" overweight are much less than the risks of the medication (unless you have a weight related medical condition, then you would be prescribed the medication at a lower BMI)

Those that have been obese are more likely to regain weight, fairly quickly after losing it so the risk to their health continues to be higher than the risk of the medication.

You need to think of GLP1s as ongoing, long term for many, treatment for the chronic medical condition of obesity. Not just a magic jab to shift a couple of stone.

If you didn't have high blood pressure, or high cholesterol, or any other medical condition that there are drugs out there to help, you wouldn't take the medication available - GLP1s are the same, if you don't have obesity they are not appropriate.

Dreamhaus · 08/04/2025 13:48

The BMI limit is also because of clinical trials, they cannot legally prescribe something that falls out of certain trial parameters and as has been said, the risk/benefit balance falls differently for someone who is obese. It's a load of crap about having less fat cells so it being more dangerous.

Hope you're feeling fully better soon OP.