I have been obsessed - and I mean obsessed - with this disease for years and years. Nobody I have met takes it as seriously as I do and I can’t understand why nit. My husband says “you could die of anything” but my issue with vcjd is that it’s an avoidable disease. I’ve read loads of research and every month I check the Vcjd statistics on the cjd surveillance website. I truly believe we are being kept in the dark about the true extent of this illness. My own mum has dementia but who’s to say he’s b it vcjd? Post mortem is the only way to truly verify the true cause of death. I ate beef in the 80s. My own son had a blood transfusion as he was 14 weeks early. This disease is a time bomb. Just wait.