You're Killing My Son C4

[difficultpickle]

Watching as I remember this news story. Rather surprised that both parents allowed a film crew to follow their son's progress and airing their views so publicly. I'm not sure I understand what they hope to gain from doing this.

The side effects are devastating, and I can understand Sally's reaction, but he would have been dead without that treatment. Can't believe she can't see that.

Nancy I suppose my 'gullible' comment wasn't aimed specifically at people in this situation. If it was me I would try anything too (but not refuse conventional therapy).

Poor darling boy.

'he should have the chance of a normal life'

That's great but it's no thanks to his mother

Wow

I hope Neon gets well & he and his sister can enjoy being kids together

I think their mum is bonkers

I'm a bit behind as I had to.pause a few times. I cannot BELIEVE this Mark guy and that shit he's spouting.

according to dh, someone's bound to convince her that the kid's names are the cause. Neon and Electra = wifi, radiowaves and bad modern cancer-causing tech

Oh dear. I've just realised that I know someone like Sally. This person won't allow her kids to wear sun block as she thinks it's carcinogenic. She allows her kids to burn instead.

From my own personal experience, cancer brings all kinds of charlatans and woo peddlers out of the woodwork ready to shower you with advice and nonsense. And it's so sad, because people are so vulnerable when they or their loved ones are going though this horrible disease.

I don't doubt that Sally believes she is acting her sons best interests, - I think she's sadly deluded, and unfortunately prey to those selling all kinds of unfeasible wave detecting, oxygen saturating bollocks.

I guess Dad goes along with giving the supplements/ juices etc because they are probably harmless, and it allows Sally to feel she has some say in the treatment - and it's important given that she ran off with the little boy previously and delayed his treatment, that she is kept onside.

The TV interview where they showed pictures of Neon getting thinner and losing his hair and saying 'isn't it terrible' etc. made me angry - yes cancer treatment is harsh, it does make you look like hell while you are having it, but cancer itself also plays havoc with your body - it's a bit of a rock and hard place situation but the ultimate goal for a child with a potential treatable cancer, surely has to be to give him the very best chance for survival, even though the treatment is unpleasant.

Very sad situation - but the important thing is that this little boy seems to be recovering, good luck to him, he's a little sweetie and deserves the very best.

Yes I know of people like Sally too

Well said Kurri

Totally agree kurrie

Apparently Linda McCartney refused conventional treatment and would only have alternative/complementary therapies. Look what happened to her, very sad.
These charlatans also prey on the parents of children with things like Autism and it is hard to prove that they do/don't work as ASD (for instance) is not life limiting. I have seen many people ripped off over the years whose children often end up very unhealthy.

Did it say what the parents do for a living? I just wondered where her money was coming from to try all the alternatives. I felt so sorry for Electra and I hope she's not screwed up when she's older. I thought it said at the beginning that they were living at their dads when the tumour was found?

I distinctly remember saying Linda Mcartney after she'd lost her hair so she must've had some kind of convententiobsl treatment. It would be nice to have the funds to try abit of everything side by side.

On her Facebook page neon's mother said she never gave for neon to be filmed and withdrew from the documentary in January.

I think that. If you read more into this you will see that his mother was not asking for the treatment to be alternative therapies vbut that she had found a particular treatment that is used in America but the NHS would not offer her son. Aren't there many cancer treatments which are available routinely elsewhere but not provided by the NHS?

I feel so very sorry for her and think she has been largely misrepresented in the press. I feel sorry for them all. I had to turn over because I found it too distressing and think his dad should never have allowed the programme to film his son, that was just awful and he lost a lot of sympathy from me.

The medical fact are that neon had an operation and then another operation but then when radiation and chemotherapy were suggested by the doctors, even though the operations appeared to have removed the cancer, it was then that his mother objected. Had both parents objected perhaps they would have been allowed to seek different treatment? Because one wanted it and the other didn't it became a matter for the courts with the NHS/doctors wanting the treatment against the mother's wishes.

It's all so sad and I cried.

And for those saying he would have been dead without treatment, what are you basing that on?

I think LM did have conventional trestment but left it too late. Although how anyone would know that I'm not sure, being "too late" I mean

some background which I know is going to be biased towards her cause but gives a different perspective than the 'crazy lady seeks woo therapies for son' angle.

From what I can see her main focus is or was raising money to allow her son to have specialist treatment that was not offered by the NHS.

tbh after watching an episode of that programme aboug GOSH and a recent panorama programme I am very about these so called "treatments" that are available in America and not funded by the NHS. "treatments" such as the one which is offered and has been a trial for over thirty years and is deeply dangerous but no-one has as yet shut it down.

Anyone who refuses treatment for their child in favour of quack therapy should rightly have that child removed IMO. No sympathy for her. she was all over the tv until not so long ago - me thinks she's probably saying she withdrew from the documentary because of the amount of negative response she's had.

I wonder if Neon had had radiation treatment after his first operation whether he would have needed the second op? His mother blocked that treatment so she may have ended up with her son needing the second op because of her actions. A hard decision to make. If there were available and proven therapies available in the US then I don't understand why Sally didn't give that evidence at the court hearing.

That blog reads like some kind of cult. I've read conspiracy theories before about the government having a cure for cancer hidden away, and I continue to assume that people who think this are troubled or deluded.

What I find odd are the personal 'she looks like a wrongun' type attacks being made against his mother. I don't think she's given that many interviews, certainly not over the last few months. I have sympathy for them all and can understand why she was reluctant for him to have the treatment if what she says about the second operation the did is true.

RE this
Rogramme, I think the father is an absolute arse for allowing his son. Be filmed while in the middle of his treatment and while in such obvious distress. I can't understand why they agreed to take part in the dirt place.

I do hope that neon recovers and that the children get to spend more quality time with their mother.

She believes all doctors have been brain washed and that the medical profession is corrupt. She belives her sons cancer was caused by her fillings. She has a dangerous mistrust of doctors and a poor grip on reality. She is not fit to be making life and death decisions about her sons treatment. I do feel sorry for her though, ans believe that she believes she is acting in her sons best interest.

proton beam therapy on the NHS for childhood cancers of the brain woo therapies aside she seems to have done her research, as requested in court, on an alternative to the treatment he was given.