Dd recently diagnosed with Pernicious anaemia

8 replies

Monica53 · 28/04/2019 18:34

HI
Well our DD has been very tired over months and we've, her included thought was stress of A level work!😪..Now having Vitamin b12 injections and will have to have quarterly for rest of her life. This is a total shock and As has taken it in her stride, though I feel awful for her! and think how has this happened.. She is also set to go off to Uni in September and now I'm dreading that even more. Anyone got any experience or provide more information about this. Thank you xo

OP posts:

crazycrofter · 29/04/2019 07:48

I don’t have any experience but my sister has this. She wasn’t diagnosed until late 20s so it’s great you’ve spotted it early.

All I really know is that she starts to get a bit more tired when she’s due an injection. And getting the diagnosis and injections changed her life as she was just so exhausted before. I don’t think it really affects her otherwise.

Fairylea · 29/04/2019 07:52

With the injections your dd will lead a normal life. As the previous poster says for most people they just get a bit tired when they’re due an injection. Thankfully it’s easy to treat with the injections now.

Fairylea · 29/04/2019 07:53

Wanted to add...

There is no “how has this happened”. Autoimmune conditions just happen, often for no reason whatsoever. It’s one of those frustrating things.

I have Addison’s disease, asthma, anaemia, hypothyroidism and b12 deficiency. Most of the time I lead a normal life. For me the Addison’s is the thing that gives me problems, the rest don’t really bother me.

Judashascomeintosomemoney · 29/04/2019 08:10

I was diagnosed with this beginning of the year. I had all of my loading doses and tbh didn’t really feel much different ( but I’m peri too so possibly that’s causing me issues too.) I’m actually due my first quarterly dose tomorrow morning though and honestly I have felt wiped out for about the last week, been having to go to bed in the middle of the day. So I’m hoping I feel a difference after tomorrow. So far I haven’t noted any other symptoms.

polkadotpixie · 29/04/2019 08:12

She will be able to lead a normal life. I have 12 weekly injections and other than getting tired in the few weeks before the next one is due, I'm perfectly fine

Try not to worry, now that people can have B12 injections, it won't kill or harm you

Original poster

Monica53 · 29/04/2019 18:16

Thank you for replies...it was a slight shock when Dd was diagnosed, however seeing GP and getting more blood tests...Also as she is due to start Uni away from home in September she has to inform Uni about this as well. X

OP posts:

user1486131602 · 08/05/2019 20:09

My son was born 12 weeks early, a long time ago.
I educated myself on food nutrition, to help.
Did you know that turkey thigh has the most iron beyond liver?
Maybe, with her going off to uni, you could both look into food choices, it might help. I hope so.
I wish her well x

MummyBear2352 · 13/05/2019 11:29

Hiya, I've got PA too! It's not that bad u promise but imagine it's a scary thought for you daughter having injections etc. I'm happy to try and answer any questions you have?

There are some good groups on FB if your daughter wants to join-B12 and PA group and PAS are good xx

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