Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

wheelchair services

12 replies

roundthebend4 · 21/05/2010 06:04

CAlled Riordans yesterday as were looking at getting him power chair and need them to fill in a form funding for charity and also mentioed about the fact that he is not sitting properly in his action3 , he slides forward and is sitting with a curved spine so is sitting more on base of spine rather than bottom .Shes like does it hurt him if hes not crying when in his chair its fine and we cant see him for 4 months anyway . no intrest at all bareing in mind shes never met ds either as we brought chair with us

what does everyone else do , is there such thing as private ot for equipment checks as once we got power chair will go after better manual chair

OP posts:
2shoes · 21/05/2010 06:31

that is terrible, posture is so important, ring them back and tell them if they don't do something straight away you will kick up a stink, (go to press or something)
it may not hurt him now, but the long term affects.....

roundthebend4 · 21/05/2010 06:59

have wote letter today complaining but apparently there shortstaffed and been told 4 months is quick.Why wondering if can go outside nhs for ot

yet ss for all there being slammed most of the time came out did report we moved in March and agreed ds needs seating in the home , hoist for bathtime yay at last and toilet seating mind how long takes to come could be another matter

OP posts:
2shoes · 21/05/2010 08:43

what area do you live in?

roundthebend4 · 21/05/2010 09:07

2shoes I'm in east herts but wheelchair services are in wellyn garden city .Here you easily wait a week for them just to return a phonecall

OP posts:
2shoes · 21/05/2010 09:46

damm, I was hoping you were in my area

glittery · 21/05/2010 14:52

Ds used to sit like that but now we have groin harnesses on all his chairs he cant, would he tolerate one?

roundthebend4 · 21/05/2010 16:28

he just might on chair we tried yesterday also had a pommel? so he could not slip forward to much and a better harness but will have to look what groin harness is

Have made few phonecalls and got it down to 8 weeks or so but still not good so am going to write and complain .

also want them to fill in ot form for charity funding for powerchair was hoping get that in asap but going have to wait

Anyone got a tame ot for form filling i know ds can drive one he did yesterday even was able to get it through lounge door no mean feat i tell you

OP posts:
glittery · 21/05/2010 16:57

i used a letter from our community nurse for ds's form

roundthebend4 · 21/05/2010 17:03

oh might try that or were seeing physio next week .I so want to get him one

OP posts:
glittery · 21/05/2010 17:16

groin harnesses

www.livingmadeeasy.org.uk/children/wheelchair-belts-and-harnesses/groin-harnesses-0013329-2797-infor mation.htm

www.specialisedorthoticservices.co.uk/poziform-pelvic-groin-control/groin-harness.html

www.qbitus.co.uk/halifax-groin-harness/

www.cplqld.org.au/business/ets/wheelchairs/seating/restraints/ottobock

we have these on ds's wheelchair, just use them higher up than in the pic and this with the optional groin harness on his snapdragon

this and this are good too

roundthebend4 · 21/05/2010 17:59

thank you

argh my head hurts everything seems be happening at once have thread on other board to with help about motorablity then have 6 appoinments coming up next 2 weeks

now the chair and funding and still trying get my head around the cp dx and trying except that he is not going to catch up like been told for so long

Wine anyone

OP posts:
glittery · 21/05/2010 20:51

its always like that, i keep a diary by the phone and every month i think it looks quite empty but within a few days its filled up, one month i had 19 different appointments/meetings to do with ds!

definately have wine! i am it at the moment and patiently awaiting final episode of ashes to ashes!

New posts on this thread. Refresh page