Hiya everyone, i'm new here so hello!
I have a two year old girl who suffers from a spinal condition called sacral agenesis, basically means she is missing a large part of her sacrum which causes numerous problems for her.
I was wondering if anyone else has a child with this condition or something similar, have yet to talk to someone else with experience of this as i am led to understand it is pretty rare.
Would like to have someone to compare notes with!! and vent some frustrations with aswell!
vici xx