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lourobert ...

4 replies

anniebear · 02/02/2010 21:02

Just saw your post on another thread and wondered how you were?

How is you DS? Cant beleive he is 4!! How is he doing? were is he up to development wise?

Anniebear xxx

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anniebear · 03/02/2010 14:05

bump

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2shoes · 03/02/2010 15:22

sorry to butt in, but anniebear haven't seen you arrond for a while, how are you?

lourobert · 03/02/2010 17:40

HELLO!!!!!

Im good thanks as is ds....was four in october and getting a real big boy. Just where has the time gone? He remains severely delayed although is making lots of positive and encouraging progress! Hes certainly got a wonderful personality.

He was seizure free for about 18 months or so but Ive noticed just recently that hes having some 'moments' so were just waiting on an eeg to see whats going on. My heart dropped as I naively hoped that we wouldnt see another one trying to tsay positive though as we got seizure control again so hopefully we can again!!

Were just going through te statementing process so lots of appointments again etc- busy busy busy!!!

SO what about your two? Keeping you busy no doubt

anniebear · 03/02/2010 21:07

Hiya 2shoes. I do look on here most days still, just dont really post that much

I do still read many of your posts. Dont know why I dont post, suppose I always felt I was moaning so much lol

we are not bad!!! thanks, read below for an update!!

LB thats fab that he is having 'lots of positive and encouraging progress' so pleased for you

Hopefully the 'moments' may be nothing. DD suddenly had a huge seizure when she was 5, had to be ventilated, still dont know what casued that one. She had been off meds for ages. Is such a shock. Hope you are ok

my 2 are 8 and a half!!!!!. DD goes to an SN school and also goes to mainstream with a 1-1 for 4 afternoons. Her 1-1 is fantastic. She goes into a lower year and enjoys it.

She is doing relly well! Is starting to read!!!!!!! Never thought she would do that! she loves it and does really well

still doesnt sleep through in her own bed and hr behaviour can be horrendous. Still hurts herself and screams at us. really struggle with it but no one seems to have the answers on what we can do

Her twin sister is fine

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