muscle issues

[Phoenix4725]

hi and d missed you all and BHappy new year

Need some help and advice ds has verbal oral dyspraxia low muscle tone and hypermoblity .But he has been pretty poorly and has had muscle breakdown so has struggled to sit , eat pretty much move .He seems made some sort of recovery but DRs have ran lots of test biopsys etc and were waiting on results he can now sit up and can chew well as good as he could before anyway .

Am inpatiant and want answers now ok he struggled with walking before needed afos and wheelchair out of house but now he cant at all any advice or tips please

No help at all, but bumping for you.
Sorry to hear he has been so unwell, and hope he continues to recover x

Can't help but sorry to hear he has been unwell. Hope you get some answers soon and that he continues to recover.
Could it just be viral? Friend's son in France (perfectly fine, NT, etc) had bad flu that went to his hips ("hip flu" in French don't know the term in English) and couldn't walk for a while now absolutely fine...
xx hugs too xx

hes been unwell since November we was home for xmas day then back again but blood tests show that his muscles seem to be breaking down rebuilding then breaking down again

Sounds horrible for you and for him! Hope you get some answers soon, Phoenix.

Hope you get some answers! I can't help with the gross motor stuff, not my strong point, but for his hands, can you get the 'squishy' physio balls for him to squeeze? I had these for DS2, you get them in different 'strengths', start off with the easiest then go up through the levels, it helps to give them some extra grip. Also squishing playdoh and stress balls can help. and hope you get something sorted soon.