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My apologies and departure

83 replies

amber32002 · 09/05/2009 06:32

I am so sorry that I have hurt people on here. It was never my intention.

I'm afraid I've discovered I have no way to explain things properly, and that when I try, it hurts people. I wish with all my heart sometimes that I wasn't on the autism spectrum so I didn't put my size 99 feet in things by trying to give too much information, which I think is helpful, but which turns out to be totally insulting

I don't want that for any of you.

Please take care of yourselves - I'll miss you all.

love
Amber

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amber32002 · 09/05/2009 18:32

I am so tired and so confused and shaken and I can't think straight at all.

A friend was looking after me today andshe said why dont mumsnet have two bits to the sn section, one for rants and stuff and one for just help, ? Would it be ok if I just had one thread I stayed onhere and so everyone else could have all the rest?

If these are wrong ideas please please dont get cross
please

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TotalChaos · 09/05/2009 18:34

I think the one thread idea is an excellent idea, in other contexts, such as relationships there have been several threads "support for x/y/z"

amber32002 · 09/05/2009 18:36

then I wont cause any problems for everyone else?

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TotalChaos · 09/05/2009 18:37

it's not about you causing problems, it's about you feeling safe and able to continue posting.

anonandlikeit · 09/05/2009 18:38

No one is cross with you amber, you do seem cross with yourself, try not to give yourself such a hard time.

What do you normally do in rl situation to calm down if something worries you?

Many on here have shown their support for you, you have to believe that support is genuine. They want you to stay.
But if you are distressed do what is best for you.

amber32002 · 09/05/2009 18:44

no Im not cross with me Im scared

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BradfordMum · 09/05/2009 18:46

Amber - Ive only recently discovered this Sn forum, and read it regularly purely due to me being a childminder and wanting to understand more about different 'conditions', for a better word.
My fear is a mum will call childminders with a SN child needing care, and they will refuse. My answer would be to ask them to visit, see how I can help and support not only the child, but the whole family, and go from there.

I can only imagine the hurt a mum would feel, facing closed doors at every turn.

Reading your threads has been invaluable to me, and I, for one would love you to continue being just yourself on here, whether it be in the Sn needs section, or somewhere else.

I think you'll see from this thread alone, that so many people DO NOT want you to leave. So you MUST stay! It is your duty to STAY!

Kind and caring regards,

Sally xx

jenk1 · 09/05/2009 18:54

Amber we could start one in the disabled section for adult aspies if you like.

alfiemama · 09/05/2009 18:55

Amber I was just thinking about this. What about a thread called Ask Amber. Would you maybe be willing to do something like this?

As you offer valuable advice to everyone with Autistic/Aspergic related questions.

Hope Ive not stepped out of line here. See I'm worrying now

HelensMelons · 09/05/2009 20:17

Glad you posted Amber, I have been checking the board all day!

flyingmum · 09/05/2009 20:19

Amber

Haven't got a clue what is going on but one of the main reasons I come on MN is to read some of your fantastic and insightful threads. As someone else has mentioned. You have had a really hard time recently and this might go towards making you feel a bit more wibbly wobbly than you might do otherwise. Your Day in the Life of have been wonderful and are now part of the teaching of Autism that we have in our school so you yes You and MN are directly helping losts of new and existing staff both teaching and support who work in education. That has to be of huge value. Then we count those of us whose ASD children have benefited from us reading your insights into their world.

I know it is scary when you realise that you have unwittingly upset someone. I have done this when in class (fortunately not very often) a year 7 disolves into tears in front of you and you feel like a heel even though you didn't mean it to happen. Said year 7 who disolved is now a strapping year 10, lovely and, a now diagnosed aspie as it happens, and we had a bit of a chuckle together about the incident.

Please don't go. I think the amount of support you have got is indicative of the level of warmth and attachment we all feel for you. Perhaps have a good zzzz and once the bother over your son's art exam has settled (school clearly to blame - extenuating circumstances - phone headteacher and have a rant - if they think their results are going to go down they will do something) then you will be able to think more analytically about this. We all worry and get upset if we have upset someone however unwittingly but think probabilities, think mathematically. You have only done it once in a year. Factor in experience of event and thus the probability of it happening again is minimised.

All the best and many many thanks for all you have given me and others. Hope to hear from you again.

daisy5678 · 09/05/2009 20:31

Amber, I don't think it needs a separate thread just for you necssarily, unless you feel it would protect yourself better. I personally have no problem with you posting wherever you want and I don't think that anyone has said that you should, except as part of a way of protecting yourself if you find what people say hard. Lots of people are asking for you to stay, and nobody has asked you to go.

amber32002 · 10/05/2009 06:53

Please remind me not to try posting on mumsnet from under a duvet after taking the emergency tablets and thank you for trying to help me. It helps more than you all know. I'm really not in a very good way at the moment, am I

I don't know why people want me to stay, really, because theres loads of people here and I'm only one of them.

Is it useful to say

Top tips for handling your visual anxiety-challenged aspie: (all optional and for advice and information only)

a) Keep it simple - say what you mean, but please please don't think the worst of me automatically please as I panic. Please just ask me if that's what I meant, so I have a chance to think oh hell no it isn't.

b) And please don't despair either, there's always a way to reason with me sooner or later. Or a way to learn something about an ASD.

c) So...if I make a mistake, I will panic but when I've stopped panicking I will always try to learn. But there's some things I can't learn, the same as wheelchair users can't just stand up and run, and people who are blind just can't learn to see by practising more.

d) I can't learn perfect Manners. I have size 99 feet (well, I didn't invent that expression but I like it) and I can and do blunder about in here making a right fool of myself in these social boards which is why I'm always using and saying sorry if I know I've fouled up.

e) I'm not an expert, I'm not a professional. I advise interested people who come to me about what it's like for me, because I'm a 'data hound' who's spent nearly 11 years finding out more about me and the people I know. Weirdly, people keep asking. And sometimes I just don't know what the right thing would be, and that's the honest answer.

f) I don't have LFA. If I'm working with a LFA situation I always ask for advice on it, always. With an expert, with the expert's guidance, or I ask an expert to help me and work with me so I don't get it wrong if I can posssibly help it. And I love hearing the advice of others with more direct experience of this. Sometimes there's four different experts saying four different things and I have no way to evaluate which one is right, so it all gets a bit tricky if one expert says "aha, it's X!" and the parent's only ever been told "Y" by another expert. I can't help more than that, other than to recall all the years I've worked with and alongside my friends with LFA.

I sometimes get shouted at by people at both ends of the autism spectrum. One or two people who are very high functioning who write to tell me they're outraged that I've 'let the side down' (er, which side, a side of what?) by saying we need any help or support (well I do). And one or two people caring for those at the lower end of the spectrum who write to tell me they're outraged about pretty much all of me and everthing I say and do . But lots of people from all bits of the spectrum who think some of it is useful. I'm always when I get the worst letters because I don't know what to do with them, so my lovely lady at Oxford helps me by opening them first and dealing with them on my behalf so I don't get the hate mail unless it's emailed to me (some has in the past, like when I was banned from a group for being on the autism spectrum and they wrote to tell me to *&^% off ). At least I don't seem to have fouled up quite that much here yet

And everyone in the advice bit and the places who ask for my comments know that I have a comms/processing disability that means there's every possibility that I'll put my foot in it or not realise the significance of not saying something to someone, or have a panic attack or a shutdown and try to run away from the fear. Why? Because I'm on the autism spectrum and that's what happens to some of us, and I can't help it.

I was asked to speak at a conference again this week and the guy was great - he didn't pressure me, just said I could decide when I got there and otherwise person X would do it, because he knows that I could panic or shut down.

So they check it all out before ever printing or doing anything with my work, which is really really wise advice and why I'd always felt ok with mumsnet because it already says that at the top of the page so people already know that this.

I just share data with people, and it makes me happy to do so because it feels like a friendship though it probably isn't, is it? I've never been able to tell what a friendship feels like to other people? What does it feel like for you if you have a friend?

I don't know what to do about all the ideas now, because it isn't something that only affects me and so I have to work out what will help everyone the most, including the people tearing their hair out that I talk too much and that I have the diplomatic skills of an elephant in a tea room. This I already know .

I will go on the disabled parents thingy, so thank you for showing me that. Maybe just a safe thread here until mumsnet have thought about whether anything else would work better, is that ok? Then I won't read anything else and everyone can post what they like and I can still cope.

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StarlightMcKenzie · 10/05/2009 09:51

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amber32002 · 10/05/2009 12:08

Starlight, I know that what you and others have written is very true, but I can't make my brain do it whilst it's panicking.

How to explain...

Imagine all the friends you have. I bet you can. And you can have feelings about those friends too, I think? You can imagine that there are (say) five, ten, twenty, etc people who think nice things about you? So if one person says something or you can think of the others?

I can only hold one picture of one person in my mind. That's it, space totally full. It's not even a very good picture. More like a stick figure really. Maybe some clothes on it, maybe a vague idea what the name of the person is, but the name is more of a pattern than a word, which is why I got t(iny)clanger and totalchaos mixed up.

And the names all feel the same, every one of them. To me, if I know someone, they are all friends. It's what gives me the most problems in life, I think, because there's nothing to tell me which ones aren't unless someone's name is really really noticeable and something's scared the pants off me (er, strange expression). Then if they namechange, my brain thinks they're someone else so even if they amazingly have the same history as their previous name, I won't have a clue it's them.

I can read something nice from person A, and that's good. and then person B, and that's good too. Clearly some useful information happened!

Then I can read something that more or from person B and that knocks every bit of the detail out of my brain about what person A said. Now all I can see is that there's a hurting or cross Person B and anything could happen next and I don't know what it's going to be. And then my brain presses the panic button faster than you can say "Don't Panic Men!" (or women).

Too late! I'm 'off on one' and then it won't move that bloomin' image at all. It's like when you put a CD track on to listen to and it gets stuck. My brain gets stuck, for hours, then it's exhausted beyond words.

And afterwards even if I've done all the calming down things and got myself verbal and (sensible?!) again, I can still only see one person's info/details at a time.

So in a weird way even if there's 99 people all saying nice things, my brain will never be able to register it as more than 1. 1+1+1+1 = 1

Oh heck, this is SO difficult to explain. It sounds awful, as if I don't care about the other 98, which isn't what I mean at all. I care very much that people aren't hurt and have fair choices and live happy lives. But it's why all logic doesn't work the same way with me. My way is logical for my brain, but totally incompatible with some situations and short of asking for a brain transplant, I haven't a clue what would make it work any better.

Er, did that help?

So, I need a) time to un-panic and b) enough people to remind me at the end that there are other people to look at next, which people do here, and thank you for doing it . A graph or chart would probably work, but we can't do those here. Or pictures.

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StarlightMcKenzie · 10/05/2009 12:22

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laza222 · 10/05/2009 16:31

Amber, I read here lots but don't really post. Your posts have been an inspiration and a real help. I love your 'day in the life' type posts. They are really super. Please don't leave.

amber32002 · 10/05/2009 17:00

Thank you I'm trying hard not to leave by finding some way that works for everyone. The Amber thread now running is one way I'm trying to give myself every break possible. Might work, might not, but it's got to be worth a try....

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StarlightMcKenzie · 10/05/2009 17:10

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amber32002 · 10/05/2009 17:21

I don't know if you're taking a risk, but I'd be very sad not to be here too?

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StarlightMcKenzie · 10/05/2009 17:28

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amber32002 · 10/05/2009 17:37

But... it's not about my feelings, alas. It's about whether my brain can handle the site in a safe way? If I can't figure out something that works, then I'd have to admit defeat. I know I've had a stupidly tough few months so that won't have helped, but if I am managing to burn out some of the brain wiring, then I need to be as gentle as I can with myself?

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jellyhead · 10/05/2009 17:39

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amber32002 · 10/05/2009 17:50

Well, since I have a Complete Lack of Common Sense, it might have to be a bit of a shared effort. I tend to get overexcited when I see a question about an ASD (you'd never guess that would you? ) and might find myself rushing out of the safe tea room space thread into all sorts of situations I'm not good at handling at the moment because I haven't thought it through properly or mis-guessed what the heading meant. If I can find the ones that are just ordinary questions like "why won't my ASD child eat broccoli" or "Can my ASD child ever learn to be a Harrier Jump Jet Pilot?! (hey, we can all dream....) then I should be ok. I've tried that today.

Whereas if I am completely silly, I won't be doing myself any favours at all.

It may be a herd-the-Amber situation. Social services would have hysterics at the very idea, but they're not here

www.youtube.com/watch?v=JWymXNPaU7g This youtube Cat Herding video gives the general idea of Amber-herding, though I don't believe we'd need the horses...and I don't have any claws.

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justaboutspringtime · 10/05/2009 17:57

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