Hello

[lebel]

Hello, I am new here, just found you through a search engine

I have two daughters, L is 3 and C is 5 months and has downs. She had open heart surgery at 12 weeks to repair a hole in her heart.

I was looking for weaning advice, I have been giving her taste of purreed stuff for 3 weeks now, which she seems to enjoy

We just got our dla award through and the extra tax credits, they'll really help, we weren't expecting them, LOL!

We have portage and go to a support group for ds toddlers,

Hope to get chatting to some of you soon, xxx

Sorry, too busy making piles of lasagne to post tonight. Under orders from supersoph.

No, not really - Chinese all round tonight.How naughty on a Wednesday night

marmoset

Am feeling very tired today didn't go to bed until 1.30am as a friend who I haven't seen for 14 months came over & we just gossiped all evening. Obviously the couple bottles of wine we consumed didn't help Am going to bed as soon as I've got the kiddies tucked in tonight, LOL!

Did a wonderful dinner where you just through all the ingredients in a roasting tray & leave for 40 mins & voila, all done. Very yummy!

Sorry for the gatecrash. Just want to say Hi to mamroset, sounds like youv'e settled back into work great. Hope you and all are fine. Take care everyone.

Well Hello!!
Have had a v busy week and have just got home from work in time to blow up loads of balloons to get ready for the littlest prince's weekend of birthday celebrations!

Ssoph I hope you have recovered from your late night. Am loving that we are both greeted by small boys blowing raspberries. The LP has mastered the sound and I swear blows raspberries in context! He is now having portage weekly and is doing ace. If you say 'ready steady' he will (eventually) say 'ah go'!!!

marmoset quite right too on having a chinese mid week! what has The Dude been up to this week? and how is your DD coping with you being at work?

Hello Dev - hope you and yours are doing ok

Hello fizzy , supersoph and de

The Dude has officially started high school which is a bit scary. It's a special unit attached to mainstream and he has a new friend who is twice his size which I can't wait to see! He has had a few weeks of transition and at first was scared of the bigger boys -some of whom are nearly 18- but has settled in now so we waved bye bye to primary school on Friday. /

de, how is your ds getting on with the new-ish school term? Work is ok but I am absolutely knackered and keep falling asleep on Saturdays 'like a pensioner', according to dh!

Here's to the raspberry blowing little ones - dd is at it too. Sure we could put an orchestra together. Birthdays here too - dd one in a couple of weeks.

Afternoon all. Have to go for an "interview" with Sam on Friday to start his Atencion Temprana, which I think is like portage (although not 100% sure what that is tbh ) Hopefully he'll start next week. It does mean that I'll have to cut his other appointments down to only twice a week but I just can't afford to have any more time off work

Sam crawled backwards on Friday and got himself stuck under one of the cots at nursery - bless him. Even though he seems to be going the awkward way about it at least he's moving around independently

DH is back from his week away so it was nice to get a lay in & cup of tea in bed on Sun morning Bit of a bummer having to share the bed again though! Am arranging a night out on Saturday & staying at a friends so I get some me time before he goes off again.

Talking of birthdays my eldest is 7 today. He took a cake to school which I made & he iced and decorated - so cute - although not allowed to say that now as he's a "grown-up boy" so I've been told

evenin'

Happy Birthday supersoph's DS - 7 is proper grown up! hope he has had a lovely day.

Atencion Temprana sounds v sophisticated - what on earth will he be doing? at the moment the littlest prince is playing at portage. Lots of signing, playing and sounds.
Its hard getting all the appts in - thank god, the LP's are all on the same day and even then it feels like I am just rushing from one to the next. At the moment it is juggling everything and work that is the hardest part of having a baby with DS. No doubt in years to come I look back at these ddays and realise they were a piece of cake in comparison

marmoset The Dude really is a DUDE - huge respect with settling into big school and finding a friend who no-one will mess with!!!

Hey fizzyanddizzy - I've no idea really what it involves yet, but I think it's a bit like your portage. I'll let you know on Fri after we've been for our "interview". DS1 did enjoy his birthday thanks and everyone loved his cake

I'm with you on the working & appointment thing. Like you say though, in 10 years time we'll look back on these days with rose tinted glasses I'm sure It actually isn't until I explain to people exactly what my week involves that I actually realise how much I do. I guess it's just become such an integral part of the week that I just don't think about it anymore. When I had friends round last week who I haven't seen for over a year they were all "wow, I don't know how you do it, blah, blah, blah" and I was all "pah, it's nothing" LOL We're such saints you know

Hi all,
Glad to here everything is going well especially with work and all even if you are falling asleep lol.
Thanks for asking marmoset about the new school term. I'm afraid to say it's not going well. he's also stopped going to his carer on a Friday teatime. He's awake most nights as well as days, I don't know how he does it. Anyway on a more positive note we are now able (or rather he is) to put a toothbrush in his mouth. Fair enought theres still no toothpaste on. (unsure if you picked up on my threads on all this) The behaviour team are trying to work out a decent incentive, knowing how defensive he is.
Anyway in the middle of looking after kids,home and work etc have you started your Christmas shopping yet???
Take care everyone x

Christmas shopping might finish me off at this rate! Still got Hallowe'een to do - ds2 is a major fan although ds1 not so keen. Last year, we walked past his childminder's house which was decorated with all sorts of spooky things and he got quite a fright and ran home. He's ok with me decorating our house because he knows it is fake but he wasn't taking any chances with theirs !
Glad you are making toothbrushing progress, de but how are you getting on with no sleep?

Afternoon all.

Had lovely long weekend (Mon was a national holiday so no school), went out with girls on Sat & stayed with friend so nice long lie-in on Sun. Did nothing yesterday but lounge around & a bit of ironing. Building up my reserves for when DH goes away again

On Friday Sam had an interview for his Atencion Temprana (portage type thingy) at a wonderful little school in the village just up from us. He outdid himself and the girl said he was one of the most advanced "toddlers" with DS that she has seen. She was so wonderfully positive about his development and about him coping with 2 languages that it was like a breath of fresh air. He starts next week am really proud of him and us

Please don't mention Christmas, it makes me feel nauseous just thinking about it LOL!

Welcome to the forum

Welcome to the forum

www.parentsofdisabledchildren.co.uk

Hello all
What was the post before all about?
Anyway Supersoph - How clever is your son??? he is v cool doing two languages- I am most impressed. Tell me what else he is doing nowadays - I love hearing what he is up to, makes me think my lp might be doing the same in a few months

dev sorry things are extra tough at the mo - have they picked up at all in the last few days?

Have just about recovered from the littlest prince's birthday celebrations - which he loved, but I actually found all a bit much - probably too much reminiscing of this time last year. Still running round like a headless chicken as normal trying to get everything done has got me back on track

Oh - and no more mention of Christmas - please!!!!!!

fizzyanddizzy - no idea what that post was about ... strange!

OK, bit more about Sam. He's sort of shuffle-crawling backwards - managed to get himself stuck under one of the cots at nursery the other week, silly thing. He's only ever quiet when he's eating or asleep It's his own little language and he very much likes to stand in his baby walker gesticulating madly at the telly, letting all the cartoon characters know what it's all about. LOL He can now sit himself up independently from laying down, which he finds very amusing and always gives himself a clap. He doesn't need to use his arm splints during OT any more, so that's a nice little milestone achieved

I think that's about it for now. I shall put some recent photos on my profile - will let you know when I've done it.

Talking of birthdays my PFB was 7 last week - can't believe where the time goes!!

New photos on profile page (1st 4 are the new ones)

Hey, where are you all. I've been AWOL for ages as well though. Last week my mum and stepdad were here for half term and we all had a great time going out and about and generally enjoying ourselves and eating too much. The week before was dreadful though as we all got sick and DH was away so had to deal with it all myself ... not nice! All better now though, thankfully.

Sam is coming on in leaps and bounds at the moment. He now pulls himself up to a standing position at any opportunity and if you hold his hands and stand behind him he will actually walk forward, bending his knees properly and everything (previously he used to keep his legs rigid). He absolutely refuses to crawl though so all the therapists are at a bit of a loss at the moment (tee hee )

This morning was also very amusing. When he woke up I brought him downstairs, changed nappy, put him in his highchair and (as always) said "say Good Morning Tom" (his older brother) and I swear he said "hewo", it was so funny - bless!

Anyway, hope you're all back soon.

Where are you all???? You've all gone & left me haven't you?

I'm here. It's good to see he's pulling himself up to cruise the furniture. As for the crawling, I wouldn't worry about it.
Glad you hada good half term with your parents staying....did they babysit??? lol
Take care x

Im here too!!!!!
life carries on being hectic here - but all ok.
The littlest prince is doing good. I have ummmed and ahhhed but he has had his swine flu jab this week and so far he seems ok!
He suddenly looks really big, although when he is then in the company of 6 months old babies who are the same size, I realise what a titch he really is. He can now get on to his knees and in a ready,steady, go position for crawling but then reverts back to swimming instead . As he can manage to get around the room by sliding it doesnt seem to matter!

The work/home life balance continues to lurch from one hectic week to another and I wonder if I will ever do anything about that but having just had a week off for half term - going back to work has been a lovely bit of a break

Hi all. There I am whining on & then I disappear because the whole family gets sick again - yuk!! We seem to be better now, but I've trapped a nerve in my back so am in absolute agony. I'm trying to get a physio appointment to sort it out

devientenigma - yes, we did get to go out while my mum & stepdad babysat. It was really nice & stayed up really late and really regretted it the following morning. Fortunately the grandparents were on hand to take the kids out for a walk while DH and I tried to kick start ourselves DH's mum is here in 4 weeks time so we shall get to go out again ... 4 times in 1 year, not bad really

fizzyanddizzy - I know what you mean regarding the crawling, Sam is exactly the same. His atencion temprana worker was trying to get him to crawl up a small ramp this morning and he wasn't having any of it - little devil He pushes himself across the floor if he wants anything so he gets there eventually

I still haven't managed to get myself properly sorted with the work/home thing. I've been back 14 months and we still lurch from the sublime to the ridiculous. I do know what you mean about returning to work after a break though. Even though I'm surrounded by teenagers, they're quite placid and it's nice to "get away" from it all Actually I'm surprised I'm still sane LOL

Howdy! Anybody there? You've all deserted me again haven't you Just thought I'd post a little update.

Sam went for a check-up today with regard to his hearing & apparently he can hear perfectly. I'm very about this though as his previous 2 hearing tests have shown (apparently) hearing loss in both ears. Don't get me wrong, I'm not complaining if he doesn't have any hearing loss I just wonder if the doc was looking at the right notes ..... especially as he called him Alessandro once!! I did then say "No, this is Sam" and he apologised because he had seen a lot of children. So I kept saying to him "are you sure" over and over again He's got to go back in 6 months so we'll see what they say then!

How's everyone else doing?

Hello!
Glad to hear about Sam's hearing test! I find that the littlest prince's hearing seems to fluctuate wildly. If he has a hint of a cold then it goes downhill v quickly ( at least thats what I tell myself - not that he is just ignoring me!). His hearing tests always come back flat?! and he is being referred on to a consultant now - but I am satisfied that he can hear enough.

Is your trapped nerve untrapped? and how is the weather doing your end? it is just grim, grim, grim here - as is work, but I will fill you in another time!

Hey fizzyanddizzy, sorry to hear that work's not brill for you. Sam's hearing fluctuates as well but he definitely hears OK ... I just think he's inherited selective hearing from his father and brother

My back is much much better than it was. It wasn't a trapped nerve, I have a very badly damaged muscle and ligament. The physio is treating it with acupuncture & I've got 2 more treatments to have and then I should be able to get away with an occasional visit to him to keep things as they should be

The weather at the mo is weird. It's definitely cooled down but, as is usual for this island, it can be absolutely grotty here at work but really clear and sunny at home. We've had some rain but I just thank our lucky stars that we haven't had the torrential rains England has - must be dreadful for those poor people.

Hi there. Just a quick message to wish you all Merry Christmas and Happy New Year School breaks up this afternoon and then we're off for 3 weeks. Unfortunately our computer at home is broken so doubt I'll get onto a computer during the hols. Have fun everyone.

Love, Soph xxxx