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248 replies

lebel · 04/05/2009 21:21

Hello, I am new here, just found you through a search engine

I have two daughters, L is 3 and C is 5 months and has downs. She had open heart surgery at 12 weeks to repair a hole in her heart.

I was looking for weaning advice, I have been giving her taste of purreed stuff for 3 weeks now, which she seems to enjoy

We just got our dla award through and the extra tax credits, they'll really help, we weren't expecting them, LOL!

We have portage and go to a support group for ds toddlers,

Hope to get chatting to some of you soon, xxx

OP posts:
marmoset · 28/05/2009 16:03

Hi soph - have you seen the free resources on the downs ed website? Might be useful for your home learning www.see-and-learn.org/language-reading/first-word-pictures/vocabulary/.

Soph73 · 28/05/2009 16:19

marmoset - yes, I've got those thanks .. however, have to admit that I keep forgetting to take them home Shall put them in my bag this minute .... there, done

Soph73 · 29/05/2009 13:05

Hi all. Result this morning ... Sam's physio is restarting on Monday. I wrote a letter to the Supervisor, put it on his desk at 8.30 and by 8.45 he was back on the list .... amazing what happens when you make it official isn't it

marmoset · 29/05/2009 21:26

Well done, Supersoph!

Soph73 · 01/06/2009 13:54

Afternoon ladies ... how we all doing?

fizzyanddizzy · 01/06/2009 18:55

More to the point, how are you Supersoph and how did physio go today?
Beautiful day today - I picked the wrong month to go back to work ggrrrr.
All the little princes are good and my head is most fizzy and most dizzy with juggling everything that needs to be done! Will be fine, once I get into a routine

marmoset · 01/06/2009 21:27

Marmoset stays quiet as still on ML and had a lovely day in the garden.....

fizzyanddizzy · 02/06/2009 07:58

Will not spend today in an all day meeting thinking of you in your garden on what is going to be the hottest day so far [fiz is now repeating 'in with hate, out with love' somewhat hysterically]

Soph73 · 02/06/2009 09:44

Morning ladies. Lovely to hear that your weather is still nice. fizzy - how's the mantra going? Is it working yet? It definitely does get easier once a routine's been established - honest

Sam's new physiotherapist is lovely and he was absolutely fine ... although I think I could probably pass him to Attilla the Hun and he'd have a great time He was completely knackered though by the time he'd finished as it's been a long time since he's had to concentrate for an hour!

Am liking the name SuperSoph - may have to change from just plain old Soph

marmoset · 02/06/2009 21:58

Still lurking guiltily in the corner here....but it is due to get rubbish again soon.

No physio for us these days but I take my dd to a little baby group each week - she was very grouchy after today though as we did quite a lot of physical games to encourage co-ordination. Something I still can't manage half the time so here's hoping for a future sports star who can keep me in the manner to which i hope to become accustomed.

Meantime, going to ds1's school tomorrow for cakes which he baked today (although he denies doing so -luckily the teacher writes a little note in his home/school diary or I would get no info at all. Typical boy )

SuperSoph - I would go for it!

fizzyanddizzy · 03/06/2009 07:59

I think we should consider it official SuperSoph!

and as for you marmoset lovely weather and cakes baked for you by your son - I can't get any greener .

Still I am v happy. Have a friend who had a bad accident last Monday, but she has come out of her coma and it was so great to see her last night still poorly but hopefully on the road to recovery. YIPPEEEEE!

Have a good day you guys

SuperSoph73 · 03/06/2009 12:14

Afternoon. Apparently SuperSoph is being used so had to keep the 73 on the end

fizzyanddizzy - great to hear about your friend

I'm going to have a semi-rant now if I may as I'm not that angry so not a full rant Went to pick Sam up from occupational therapy and his face and his top was covered in chocolate spread. The therapist had been putting it on his lips to get him to exercise his mouth. Then she'd put some on the end of a spoon to see if he takes food off a spoon properly.

Now, I'm not adverse to my kids having chocolate but the thing is she didn't even ask if it was OK until I got in there. She sort of turned, gasped and said "oh, he isn't allergic is he?" To which I replied "luckily for you, no!" She did look a bit sheepish. The thing is what if he had been allergic and what if I didn't want him to have chocolate at this age?

Sometimes I'm amazed at how stupid professionals can be!

Rant over, thank you

marmoset · 03/06/2009 15:55

Hi fizzy - best wishes to your friend for a speedy recovery - what a fright to get.

supersoph - 'better to rant than to stew' as the old proverb goes (well, if it isn't one, it should be ) I'm surprised that she didn't check first too. My ds1 used to dislike gooey textures and the play therapist used chocolate mousse as fingerpaint to help him get over it - a very successful ploy but she was v careful to check that it was ok, as it flew in the face of the council's heaalthy eating mantra.

SuperSoph73 · 04/06/2009 11:07

Morning ladies .... SuperSoph strikes again (sort of)

Went to one of the many social security offices this morning to find out why we hadn't been getting the 100 euros a month towards nursery and the answer, because I hadn't filled out the form to say I wanted it! However, I didn't realise there was another form as the woman at the social security office you go to once you've had a baby told me I didn't need to do anything else. You'd have thought I'd have learnt by now that there's always more than one form to fill in

Anyway, we should now get the money, I'm just peed off with myself that we've been struggling along for the last 7 months without it. Hey ho, live and learn

marmoset - did any of the mousse actually get used for "painting"? It certainly wouldn't have done with my boys

marmoset · 04/06/2009 14:55

Supersoph - will you get any of that backdated? Usually not - it reminds me that I have to fill out that Child Trust Thingy form for dd but when dd was born, all the banks were in meltdown so I held off doing it then.

The chocolate mousse did in fact end up as art because he wasn't keen on chocolate then. All change now - he will eat as many Aero mousses as I am prepared to give him but still doesn't like sweets or fizzy drinks so I can wear my 'Smug Mummy' badge with pride. Same can't be said of ds2 whose teeth must be dissolving by now

SuperSoph73 · 04/06/2009 15:27

marmoset - no nothing gets backdated here, unfortunately. The benefit starts from the day you hand the relevant form in sadly

Will wait and see how DS2 is with sweet things. However, if he's anything like DS1 I'm sure he'll love everything and anything. The good thing is that DS1 doesn't overdo it and does like fruit and some veg and does a lot of exercise. He would drink a whole bottle of orange Fanta if I let him though, hence we don't have fizzy stuff in the house. Well, there's diet coke but that's strictly to go with Daddy's Tia Maria so no-one's allowed to touch it

fizzyanddizzy · 06/06/2009 10:52

Hello all
What a long week!
SuperSoph am gobsmacked by the chocolate incident (that's well bad man!), they should indeed know better. Although it has put an idea in my head for how to tempt the littlest prince...

who was seen by the paed yesterday who seemed most impressed by his teeth, his fine motor skills and most notably his ability to put his feet in his mouth roll on next year's Britains Got Talent.

Hope you all have a good weekend.

SuperSoph73 · 08/06/2009 12:03

Hey fizzyanddizzy how was the rest of your weekend ... and everyone elses? I hear the weather in England has resorted back to it's usual state. Was completely gobsmacked though about snow - what's going on?

Great to hear the paed was pleased with your little one fizzy. Sam's next appointment is in July. He's still only got his bottom two teeth though His sitting unaided is getting there, although he still topples sideways. He's getting a new "body-board" thingy from the OT soon as he's outgrown the other one - bless!

marmoset · 08/06/2009 15:55

Hello ladies - well done fizzy's princeling and to Supersoph's Sam (anyone old enough to remember 'weebles wobble but they don't fall down?' Used to sing that to ds1 when he was practising sitting. No? Just me?)

Good weekend for us - ds2 was on a sleepover so it was nice to spend some time with ds1 once the baby had gone to bed, just the three of us. Love ds2 to bits but he is a 10 year old human tornado and it can be hard for ds1 to get a word in edgways so that was lovely.

I even read a book - yippee.

I am not going to write about dd who is in my bad books for reneging on our sleep deal. Ok last night but up 4 times [grrrrrrrrr] on Friday night. Back to the drawing board - Barbados will have to wait

SuperSoph73 · 08/06/2009 16:01

Hi marmoset. Unfortunately I am more than old enough to remember weebles Glad to hear you had a great weekend. Sorry to hear about your DD hope she gets back to sleeping properly every night for you. Had to get up twice last night with Sam as he keeps trapping himself in the cot. Fortunately he doesn't wake up though so I sleep-walk in, put him the right way up and go back to bed

fizzyanddizzy · 08/06/2009 21:02

I LOVED weebles, now I just look like one

soph what is a body board??? Does it help with sitting? The paed did say that his tone was a bit low and he should practice sitting as much as poss - I can't imagine the little prince will ever sit alone. He is particularly delicious at the moment though. So good and So cute.

Marmoset sounds like you had a fab weekend. So nice to get to spend time with just one at a time. And v nice to be able to read! As for your dd, well I am boy biased but I think you just need to get used to the badness of girls!!!!

I have just got in from work and am going to bed. I seem to be living on tea and diet coke and cant find enough hours. Ho Hum.

marmoset · 08/06/2009 22:28

Passes fizzy a hot cup of cocoa - night night!! Tip toes away to the sound of zzzzzzzzzzzzzzzzzzzzzzz.

Hopes Sam does not go on manoeuvres tonight....

SuperSoph73 · 09/06/2009 10:09

Morning all.

fizzy - actually it's just what I've called it. This is it. He doesn't use the towel now.

Hope you had a good sleep

How's everyone today?

marmoset · 09/06/2009 20:41

Hi supersoph - mainly a good day today but ds1 was a bit poorly at school with a cold and then sent home from the childminder early. He is flushed but no temperature although he is complaining about being 'sore'. I'm going to keep him off tomorrow - it isn't likely to be serious (ie swine flu!) as he's bouncing around upstairs just now but in the current climate, i'll keep him with me tomorrow.

Is fizzy still asleep? [runs for cover]

fizzyanddizzy · 10/06/2009 07:50

I am feeling tip top after a couple of nights of good sleep - almost dare I say it - cheerful!

supersoph I didn't really look at the body board so taken was I by Master Sam who is so devilishly HANDSOME. Really, I know I am a sucker for boys but he is just a lot lovely! Anyway, once I did look at the board, I couldn't work out what it's meant to do (prob being thick) can you tell me cos In have physio and OT coming round later to assess the LP.

marmoset - me and the biggest prince have coughs and colds and feel a bit grim, there is certainly something going round where we live.Hopefully thats all your ds1 has.