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248 replies

lebel · 04/05/2009 21:21

Hello, I am new here, just found you through a search engine

I have two daughters, L is 3 and C is 5 months and has downs. She had open heart surgery at 12 weeks to repair a hole in her heart.

I was looking for weaning advice, I have been giving her taste of purreed stuff for 3 weeks now, which she seems to enjoy

We just got our dla award through and the extra tax credits, they'll really help, we weren't expecting them, LOL!

We have portage and go to a support group for ds toddlers,

Hope to get chatting to some of you soon, xxx

OP posts:
SuperSoph73 · 10/06/2009 12:11

Afternoon all

fizzy - he is adorable isn't he, I think there are loads on my profile as well The body board thingy is for him to use his arms to push himself along ... well, that's what I understand anyway. That's why he's getting a new one with little legs, then casters because he's too big for it now. He also has arm splints (which he isn't wearing in the piccie) to keep his arms straight and a band that goes round his legs to keep them together.

marmoset - sorry to hear that your DS is poorly and yours too fizzy. I can feel a tickly throat coming so am going to dose myself up once we get home. I also had to give Sam his eye drops this morning as they were gunging (!!) up again.

Hope we all manage to nip whatever it is in the bud before it takes a full hold.

marmoset · 10/06/2009 16:07

Hello fizzy and supersoph - ds1 seems absolutely fine today (as they are when you keep them off school and suddenly the drippy nose and aches and pains clear up )He is going around saying 'oh dear, summer cold' a lot though.

Glad you had some good sleep fizzy - it really does make all the difference. I definitely have a link between gloom and sleep deprivation. Occasionally, I just go to bed at the same time as the boys but this does leave dh feeling a bit lonely downstairs

Lovely pics, supersoph

Sending positive thoughts and echinacea drops to ward off summer colds to one and all!

SuperSoph73 · 10/06/2009 16:11

Hi marmoset & thanks for drops ... although I have no idea what echithingy is

Have just had a phone call from the hospital to say that Sam's OT is off sick indefinitely now! Have only just managed to get him another physio after a wait of 2 months - hope it doesn't take them that long for OT.

Saying that, I obviously won't and I reiterate the won't be waiting that long before I write a letter this time. See, I'm learning

fizzyanddizzy · 10/06/2009 18:34

Blimey what a palaver Supersoph - if it's not one thing... Just remember you havn't got your name for nothing, keep hassling them and keep 'em on their toes

Alex had his physio / ot appt this afternoon although only the OT showed up. Most helpful though - she is getting him a little chair which will mean he can sit up on his own which will be great. He was most clever - although think he is teething again (as am I - thought I was too old for wisdom teeth!) so everything she gave him just went in his mouth.

Good result marmo on your DS1 feeling better. And good call on the echinacea - think that has stopped my sore throat in its tracks.

Portage again tomorrow - he will be at Uni before I know it

SuperSoph73 · 11/06/2009 09:32

Morning all.

fizzy - is his little chair like a Bumbo? Sam has a Bumbo and it makes him sit up quite straight. He still leans a little to the right, which seems to be his favourite side

Will deffo be keeping them on their toes this time

Regarding teeth - I only have my bottom 2 wisdom teeth and every now and again a bit more of them breaks threw the gum and it is piggin' painful. No wonder babies create when they're teething. Oh, and I'm 36 fgs!!

marmoset · 11/06/2009 15:18

Don't like to mention that I have had two of my wisdom teeth out - can I have violins please?

SuperSoph73 · 11/06/2009 15:28

marmoset - will these do???

Don't envy you. DH has just had major reconstruction done on his "top set" and quite a few teeth out.

marmoset · 11/06/2009 16:39

Thank you very much supersoph - those are perfect Hope DH not wimpering too much!

fizzyanddizzy · 11/06/2009 20:53

I would like to say I am being as brave as the LP with my teething, but I would be lying so instead I will say 'big respect' going out to you Marmo on having had two out. I feel faint at the thought.

The seat they are getting Lp isn't bumbo like I dont think. They called it a corner seat and he sits on it like he would if sitting on the floor - so legs straight out. Have no idea what its like actually but will no doubt soon find out.

Right in my desperate attempt to find some time in my life, I have found a cleaner, who starts tomorrow so I need to go and tidy the house...

SuperSoph73 · 12/06/2009 12:05

Afternoon.

LOL fizzy at you going to clean the house before the cleaner comes round My mum used to do this when we lived in Hong Kong and had an amah (sp?). Dad used to have to restrain her otherwise the amah would get upset with "Mrs"

Show us a piccie of the chair when you can. Sounds intriguing

marmoset - his treatment actually finished at the beginning of the year so the wimpering has nearly stopped It was very severe though - they had to put bone grafts and collagen in so all in all it took a year to sort out .... ouch!

SuperSoph73 · 12/06/2009 12:06

Oh yes and the simple fact that we will be poor for the next 5 years while we pay off the load we needed to get the work done ... 11,000 euros .

SuperSoph73 · 12/06/2009 12:07

Obviously I meant loan. It's Friday .....

marmoset · 13/06/2009 18:01

Wow - double whammy supersoph (aka the jetsetter!) - I think the loan wimpering outweighs the pain wimpering any time! I actually go around my house telling everyone to brush and floss properly or face major dentistry bills later but clearly toothpaste won't solve all probs. My friend's dh went somewhere in eastern europe to get his teeth sorted as his GB dentist told him it would cost £30,000 here - yikes.

I'm the same fizzy - I tidy up before my cleaner comes round so that she can see the floor . I feel very decadent in keeping her on during my ML but I didn't want to lose her - I go out with dd and come back to a nice clean house. Some ladies lunch, some get their nails done, some go to the spa but me, I like a clean kitchen floor.

Yes, I really do know how to live...

SuperSoph73 · 15/06/2009 12:43

Afternoon all.

I've scarred my baby for life We went to the swimming pool on Sat, Sam was sat on a sunbed & I turned my head for a second ... really, it was 1 second & he fell off the sunbed onto a concrete floor, head first The noise will stay with me forever, it makes me feel sick just thinking about it. Fortunately there was a private docs at the end of the road & she patched him up. He didn't need "real" stitches, just the butterfly ones. I'm a bad mummy.

On a positive note ... we now have internet at home - yay

marmoset · 15/06/2009 14:34

Oh supersoph - what a fright for you. Hope Sam isn't in too big a huff! My friend had a v similar expereince of turning away for a sec when her dd fell down the stairs! Luckily, all well but she still feels sick about it, 8 years on. You do need nerves of steel in this business

Home internet - now you'll be like me and no-one will get any dinner because you are on mn

SuperSoph73 · 15/06/2009 15:03

marmoset - I think he forgot about it 5 mins after the doc patched him up fortunately

I'm going to have to make sure I do the dinner first then

fizzyanddizzy · 15/06/2009 19:38

Supersoph - what a clever brave pair of soldiers! I cant believe I have got to Alex being 8 months and not dropped him yet - which now means it will happen before the end of the week

Result also on home internet. I have found returning to work most inconvienient for my internet browsing.

Have spent the weekend filling in the DLA form and have found it really demoralising and after spending yesterday with his cousin who is only 8 weeks older but might as well be 8 years older for the differences in them, I have been brought back to earth somewhat. Oh well - thought I had been feeling too positive about it all for too long [grrr]

SuperSoph73 · 16/06/2009 12:35

fizzyanddizzy - I know what you mean about demoralising. When I see Sam with children a month or so younger and they're crawling or walking I do get a bit down. However, what I then do is take stock, think how much he has achieved and feel very proud of him. Also I'm at the hospital 3 times a week and get to see all sorts of children who are much, much worse off than Sam & I give myself a mental slap and wonder what the hell I've actually got to worry about. It's not always easy though.

Sam's head is healing nicely so being the absolute idiots wonderful parents we are we're giving the swimming pool another go on Sat Of course I will be wrapping Sam up in industrial bubble-wrap just to be on the safe side

Was very good last night - didn't go on the internet, cooked dinner instead What would I do at work all day if I MNed at home

fizzyanddizzy · 17/06/2009 20:45

Hello!
I have nothing new to report have spent most of the week so far at work - hardly seen the boys at all and got to work tomorrow morning so no toy library. Feel v guilty. [grrr]

Quite right to go back swimming supersoph. Sam will no doubt have a great time - am glad to hear he is healing.

You are also quite right in thinking that actually we have precious little to worry about. Onwards and Upwards with our genius little soldiers

SuperSoph73 · 19/06/2009 13:25

Afternoon all. Am overcome with boredom at the moment. Just want the end of term to come round asap - only another 2 weeks to go, yippee

DS1's summer concert was yesterday. His final Infant Department concert as he's going up to Primary in September. It was very good and all the children seemed to enjoy themselves. Unfortunately the fire alarm was set off by the smoke machine they were using ... oops. There was an exam on as well and the teacher invigilating actually evacuated the room. Poor kids!

Sam's head is looking good now & there's hardly any bruising left. Will actually get round to putting him in his swimming ring tomorrow. I'll take some piccies

marmoset · 21/06/2009 18:12

Hello ladies - been swamped by a sickness bug in my house this week (literally) so hoping we're all clear now. It started with the baby - don't know where she picked it up!- and now everyone has had a dose. Poor ds1 was caught out and threw up on the sofa but decided not to tell me until i came downstairs, at which point he informed me with the dread word 'yuk' (yes - it could have been a lot worse).
Hoping it hasn't soaked in too much or there will be a smell of eau de puke in my house for a long time (new sofa - grrr).

supersoph - big boy at the Primary next year!! Is he excited?

fizzy - hope you have felt better this week!

fizzyanddizzy · 24/06/2009 19:59

Hello you guys!
I feel like its been ages since we last caught up.
marmoset how is everyone in your household - all fully recovered, including your sofa?

and supersoph how goes it with you? did you go back swimming and was it incident free?

We are all ill in our house. Poor Alex is worse off - wakes up absolutely pouring gunk from his nose, cant breathe to drink milk and tonight has a temp of 39. Is in bed at the moment with no clothes on snoring away .

other than that all is great

SuperSoph73 · 25/06/2009 14:50

Hi fizzyanddizzy. It does seem like a while doesn´t it? Yes, we went back to the pool and it was completely accident free Will try and remember to bring camera in so I can upload some piccies. Hope your lot feel better soon, especially Alex. I remember when Sam was like that, it's horrible watching them struggle to eat, breathe, etc. Big, gentle hug for him

Had all my hair cut off last weekend. Bit of a shock to the system as it's been about 20 yrs since my hair was last this short. I did it because I was growing the colour out and because the weather's warming up and I've never been through a summer where I haven't had to put my hair up. Just don't want to be fannying around with it when it's hot.

marmoset - how are you and yours? Yes our DS1 is looking forward to going up to Primary and he is literally going "up" as it's on the top floor of the building

marmoset · 26/06/2009 17:26

Hello - all back to normal here now. Phew - fizzy - how is Alex? That sounds a nasty bug - hope he is ok. My ds1 used to get a lot of colds as a baby and they went to his chest until he was about 2 - hope Alex fought this one off without the need for antibiotics.
supersoph - are you enjoying your new hairdo in the sun?!

fizzyanddizzy · 26/06/2009 20:41

Hello
Alex has been to the GP today - who has prescribed antibiotics. Think I am going to give him till the morning to see if he picks up and can avoid starting the anti-b's.

He has been so good though - had portage yesterday and obviously felt so awful, couldn't breathe, eyes streaming but he sat there and concentrated and did everything he was asked!

Supersoph - yes how is your hair doing? I cut all mine off in November - and am now growing it back again have had to face up to the fact that I only like my hair tied up and scraggly!

marmoset - glad everyone is back to normal in your house! we have had our first near miss with swine flu, am sensing its only a matter of time!