feeling down thinking we may know whats up with dd!

[trace2]

i know there's loads like us around who not or never get a dx, just sitting thinking about what ifs?

my dd is so sweet and loveable we shouldn't complain , but so scared we may lose her one day to one of her blue episodes or some thing else not knowing if we could help her ,is really getting me down

the title should have said never getting a dx

Oh Trace, and a glass of something strong?

thanks 5inthebed i know its cos we got letter from genetics saying the last test was clear, yes we wanted it to be but yet we didnt if you know what i mean?

Oh trace2 can't believe that you are still no nearer finding out what is causing all this trouble!

and yes, i get exactly what you mean about wanting the test to be clear but also needing an answer.

I know exactly what you mean. Sorry the genetics people didn't find anything. What else is being done?

more blood tests at genetics, waiting for neuro again, but one good thing shes put a little weight on now 20lbs the g tube doing some thing

Clever girl! There is always a silver lining somehwere.