childrens disablity team assessment advice please

[Phoenix4725]

We was orginally turned down for a assessment as he did not have a asd dx but after calling them following advice from Mn

we have got a assessment from the childrens disablity team there coming out on Thursday to assess ds and im wondering what they will ask etc any advice please

They usually ask:

What your ds's needs are any diagnosis's
what professionals are involved with the child
your gp
what family support you have
whether you work, have a dh/dp
what other children and whether they have additional needs
Sometimes they ask whether the house is suitable for his needs and may look round - this is so the OT people can be involved for any adaptations that may need to be undertaken
I think they ask how you are (any depression/illness etc)

Then they usually ask how they can help, tell you about what they can or cannot do and ask what you think will be suitable.

thank you seems be where i live with out the asd labe,l they dont offer anything but got be worth a shot

but need them on board as counil wont do any adaptions without them and more so wont even allow me to do either evan with me bearing the costs

And if you want help, please make sure you tell them about the worst days - we all have a habit of putting on a bright face and telling the professionals that everythings ok when its not!
Help might mean
specialist holiday playschemes
physical help in the home at specific times
access to mental help for you
sibling support
help to take dc's out....
endless list depending on local facilities.

Good Luck

Ladyfio - it there anyone with a disabled child who does NOT have depression?

phoenix I think they are trying to fob you off. Are they really trying to say that children with developmental disorders or delayed are not 'disabled' if they do not have an asd diagnosis??? Is that not discrimination?

If you have any reports from your sons professionals, that might help your cause too

i got reports a plenty , its more that he does not present with obvious challenging behavious which seems to be more their yardstick.but then at home I have things running to head of as many tantrums as possiable

The fact that he has no sense of danger at all or understanding of it seems be neither here or there in there eyes,.

yes apparently last time he was classed as not disbaled enough ok hes knowhere near as bad as some in his needs and will admit to that but he is enough to impact on his and my other dc lives

Apparently our local area has re-classified "disabled" as meaning not able to walk, any thing else is "able"....!

Sorry, this does not help you, but what you said about behaviour and sense of danger is very relevant, you need to tell them all that.

he does have problems with his moblity to we get high rate but even last time was not enough

but without them council will not allow me to put bannisters on stairs and change my backdoor steps to a slope so he can get out without assitance

But fingers and legs crossed this time they might listern

"Apparently our local area has re-classified "disabled" as meaning not able to walk, any thing else is "able"....! "

well surely that is discrimination aswell??

wtf are they on

its was only down tothe link think was amber put up tht said councils can not refuse to do assesasment, that we got this far this time.

hopefully will know more Thursday

Ladyfio it was a sn teacher friend who told me this - she is trying to do transitions for 16 - 18 y-olds and coming up against brick wall in local authority.

how awful

You should be able to refer to the CHD OTs yourself although some authorities insist that a social worker is also involved for case-responsibility (something to do with the way they interpret the legislation).
If that's the case, ask the social worker to refer you.
The OTs in that team would make the recommendations for banisters and access etc. They can also make recommendations for things related to safety such as coded locks, different locks on windows, sound-proofing rooms for kids whose behaviour is made worse by too much noise etc, safety in the garden (that's harder to get past the grants departments usually).
Make sure you discuss your needs as well as DS's and ask for a carers assessment (which will be a full detailed assessment of what you need to keep caring for him).
Ummm ...just lost my train of thought. Hope that helps.