Pyruvate Dehydrogenase Deficiency

8 replies

meltedmarsbars · 27/03/2009 22:53

I hope i've spelled that right. Anyone know anyone who has it? What is it like? The websites are fairly complicated.

OP posts:

bubblagirl · 28/03/2009 12:43

bumping for you i haven't heard of this before im sorry

PipinJo · 28/03/2009 16:34

This reply has been deleted

Message withdrawn at poster's request.

Original poster

meltedmarsbars · 28/03/2009 22:45

googling gives me heeby-jeebies because its not great and not easily understood.
PipinJo, dc has severe hypotonia, microcephaly, severe feeding problems (aspiration leading to gastrostomy), list continues....

...was wondering if others out there...

OP posts:

bubblagirl · 29/03/2009 09:05

bumping for you

bubblagirl · 29/03/2009 09:07

this seems to explain alot

PipinJo · 29/03/2009 11:17

This reply has been deleted

Message withdrawn at poster's request.

Original poster

meltedmarsbars · 29/03/2009 11:19

Complicated isn't it! And not encouraging.

OP posts:

PipinJo · 29/03/2009 14:42

This reply has been deleted

Message withdrawn at poster's request.

Flip