Hi, our DD (10 months) has just been diagnosed with Canavan's Disease. We are devastated by this news and are still reeling at the implications and the fact that she won't live very long. Has anyone out there any experience of this disease? I appreciate that if you've been through it you may well not want to talk about it but it would help us so much to try and come to terms with it and to give us an idea of what our options may be.
Thanks.