Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

all you lurkers

58 replies

2shoes · 22/11/2008 17:57

you can talk to us, we don't bite

OP posts:
2shoes · 23/11/2008 12:54

oh don't go to post and delet. I know I for one would love to read all of your posts

OP posts:
NattyTantrumAndEarAche · 23/11/2008 20:17

i am guilty of lurking it must be said
my son is under going assessments, but the area i live in are so crap its been going ona year, and we're no closer.
i mean i know what it is but docs dragging their heels because ONE box isnt ticked.

so i feel like i cant post cos i dont def have a SN child, but then i find the posts on here from ppl with children with similar problems reasurring.

plus same thing as others have said... dont want to complain when others have much worse, life or death situations.

love you all though xx

TotalChaos · 23/11/2008 21:01

hello to all our lovely lurkers.

Natty - don't feel you can't post because your child doesn't have a diagnosis - we all know what it can be like re:waiting lists (DS had to wait 13 pigging months to see a paed), and that it's not always a straightforward path to a diagnosis.

gemprincess · 23/11/2008 21:16

Hi everyone, i am a lurker, but only because i am still so confused in my head about my baby boys so called problems!! I always read with interest and gain massive amounts of helpful advice, just dont know where to start in explaining everything on my own thread. Hope that makes sense, sorry. x

pipintroll · 23/11/2008 21:28

I have posted now and again but my ds has no dx as yet and I feel like I am a learner and don't have much knowledge or experience to offer others.

Have taken great strenghth from reading and learning from other people on here though. x

Elffriend · 24/11/2008 13:52

. I lurk. Would hate to get it wrong and patronise but feel I like I know many of you as I have followed your posts so closely .

You would all be welcome at mine for a playdate. I always have good biccies for the mums too..

feelingbitbetter · 24/11/2008 15:05

Oh, please post and 'get it wrong'. I do all the time! It helps me learn about other conditions. And I think most people on here have fairly thick skin and can spot a foot in mouth moment without taking offence.

I'd love to hear your stories. Knowing other people are going through the same thing is a great comfort.

feelingbitbetter · 24/11/2008 15:08

See, foot in mouth moment! I'm not glad any of us are going through anything - what I mean is, we're all in a similar boat, dealing with similar things and its a comfort to know you are not alone.

2shoes · 24/11/2008 15:27

feelingbitbetter I think we knew you meant that

OP posts:
kettlechip · 25/11/2008 11:54

I was just thinking this morning it was nice to see some lurkers getting in on the action.

I lurked for months before I joined in, God knows why as it's so friendly on here! It's so much more fun getting involved though, and everyone's point of view is valid, no matter how mild or severe your dc's issues, (my ds has no dx yet) it's just nice to have a range of views and experiences to share.

Widemouthfrog · 25/11/2008 16:12

I lurked for months when i was worried that my DS had an ASD. What I read helped me crystalise my worries and ask for professional advice - 12 months on - diagnosis (HFA and epilepsy) and statement for school. Mumsnet is the best resource I have had.

I do now post, as I feel I have earnt my place with the battles we have fought in the last 12 months.

DorisIsAPinkDragon · 25/11/2008 17:00

Julier1 I feel much the same and also have a dd with CF, I take my hat off the battles that some have to go through to get their dc's the help they need

SunshinePine · 25/11/2008 17:36

I must admit I often lurk around if I don't have much useful to say, don't want to make oneself look silly now.

julier1 · 25/11/2008 21:25

Hi Doris great to find some one in the same boat. How old is your dd? My dd is 6 nearly 7. she is really well at the mo. She is on an eflow nebuliser. Nearly a year since she was hospitalised. What part of the country are you in?
sorry for hi jacking this thread

MatNanPlus · 25/11/2008 21:38

I lurk/post.

Fropm the veiw point of a sister with 2 younger foster siblings {unrelated} with Downs.

C was 2 weeks old when she came to us and moved into a care home in 2004 aged 30.

E was 8 months and moved to a family placement in 2004 aged 24.

These moves were after the death of our mum and i wasn't in the position of being able to offer continuity of care due to my abusive neighbour - 3 999 calls as he attacked my DH and bangs on the adjoining wall for hours on end day and night.

They will always be my sisters.

Sadly C has been severely let down by the system and we are fighting all we can, E is very happy and helps rear livestock, drive a quad bike and is thriving.

DorisIsAPinkDragon · 26/11/2008 19:39

Julier- dd is 16mths and has had nebuliser in the past for pseudo but off atm. Madmumnika also has a dd who is 16mths with CF (I'm sure she wouldn't mind me telling you.

Do you use the cftrust boards??

Maybe we need a CF thread >

DorisIsAPinkDragon · 26/11/2008 19:52

Julier I've been brave and done it I'll be on www.mumsnet.com/Talk/special_needs/655581-Experiences-of-CF-cystic-fibrosis-come-and-share-I-know?rn d=1227728986477here

hope you'll come and join me!

AussieLou · 27/11/2008 10:37

I will admit to being a lurker. I don't have any children (well except the ones I nanny for) but I find that I can learn a lot on here and hopefully it makes me a better nanny. Plus it gives me insight into how much much crap you all put up with from officials etc and makes me realise that my life is not that bad after all and I tihnk you all do a fab job as mums.

isgrassgreener · 27/11/2008 12:05

Lurk far too much - sometimes post but not very often, don't feel I have that much useful advice to give, many of you offer so much good advice I don't think I could add much more.
I don't worry that you will bite me

IdrisTheDragon · 27/11/2008 12:08

I lurk here. I don't have any experience of children with SNs, but I do feel I am learning more by lurking here. Hope no one minds .

FioFio · 27/11/2008 12:09

This reply has been deleted

Message withdrawn

alfiemama · 27/11/2008 12:26

I lurk and post and sometimes can be a bit vocal (oops) but lurking on here has given me so much knowledge that will hopefully stand me in good stead with ds.

Thanks makes me appreciate that mumsnet is a good forum and a valid source of info unlike the daft postings on other threads on here

Grammaticus · 27/11/2008 12:32

What Idris said. Hello everyone!

VictorianSqualor · 27/11/2008 12:45

I feel similar to sibling about posting in Sn tbh.

I have posted a few times to ask questions about DD's dyspraxia but on other threads I don't feel I 'know' enough to comment iyswim.

PheasantPlucker · 27/11/2008 12:49

I lurk more than post.

Hello!