Hi Everyone!
I am finally getting around to doing an update after Jamie's paed appointment on valentines day. (Jamie is FTT and undergoing sweat tests for CF).
Anyway, we went and as anticipated by me and dh, Jamie was admitted to the childrens ward for more tests as he still only weighed 14lb 3 oz at 7 months and 3 weeks. All of the standard tests have come back negative. They sent him for a 4th sweat test, but still couldn't get enough sweat, so took bloods for a genetic test instead. We are still awaiting those results as well as the fecal fat test (checking how much food passes through his system undigested). The paed has refered him to the cardiology team at Birmingham childrens as J still has a heart murmur. We were also told that his heart beats a bit faster than it should do for his age, about 140 instead of 110bpm.
One bit of good news was that the dietician and hospital play specialist spent a few hours working with Jamie one day and he has now been on 3 solid meals a day as well as his breastfeeds for nearly 2 weeks. We do have to add butter to everything to help fatten him up! I guess time will tell how fast he will gain weight. He has to attend weekly weigh-ins for the next 8 weeks until we go back to see the paed.
Aside from our week long stay at the hosp, we have been hiding out at the houses of our friends and relatives while the house is in disarray from the extension that we have had built. The walls were knocked through while J & I were away, so it is damn cold in here!!
Hope that everyone else is well.
Kerry & Jamie x
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9 replies
connorsmum · 27/02/2005 15:05
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