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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

newbie to boards

25 replies

olismum · 13/05/2008 13:47

Hello,

all I just wanted to introduce myself as im new to the boards.

my son is now almost 2 and we have recently received a diagnosis of a deletion of part of chromosome 13. we have yet to meet the geneticist to talk about what this means for his future. but in a nut shell, he has a global development delay, has asthma and is susceptible to chest infections.

still feeling in a bit of a limbo, but we have physio, portage and salt in place and our consultant has been really supportive and approachable, which makes a refreshing change

look forward to chatting with you all.

OP posts:

shiny1 · 13/05/2008 14:11

Hi and welcome.My dd2 is 14 and has a deletion on chromosome 5.She has severe developmental delay,is totally tube fed,has a heart defect,3 kidneys and so on etc.She cannot walk or talk and has very bad behaviourial problems.But even after all this she understands every word we say,and she has a wicked sense if humour.We really would not be without her even though it is very hard work Thinking of you and enjoy your sonxxxx

FioFio · 13/05/2008 14:14

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2shoes · 13/05/2008 14:21

hello and welcome
I have a dd who has cp (and a 16yr old ds who has teendom)

expatinscotland · 13/05/2008 14:23

Welcome!

I have a nearly 5-year-old girl with dyspraxia, gross and motor skills delays and learning disabilities.

We're currently doing the rounds of SALT, OT and ed psych pre-school assessments so that her healthcare professionals can try to get her the proper support for her to begin school in August.

Arabica · 13/05/2008 15:18

Hello!
I have 21 month-old DD with GDD and no overall diagnosis. She's super-cute, really mischievous and can say hello in Makaton!

sarah293 · 13/05/2008 15:20

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LMAsMummy · 13/05/2008 16:42

Hello, I have a daughter with CP, who cannot walk. Am very new to this too! (board, not SEN!)

deeeja · 13/05/2008 21:15

Hi I have a 3 year old son with asd, and a five year old son with as and severe attitude problem, and an 18 month old ds who can spot an oppurtunity to make mishchief from any distance!
I also have an 18 year old son with as, who ofcourse knows everything about the world.
WELCOME!

Original poster

olismum · 13/05/2008 21:16

nice to meet you all. thank you for making me welcome.

as i said look forward to chatting to you all

OP posts:

TheodoresMummy · 13/05/2008 21:44

Hi olismum

I have a DS (4.5) with Aspergers.

Look forward to getting to know you better.

ouryve · 13/05/2008 23:35

Hi, Olismum

I have a DS, 4.5 with Autism, and another DS, just turned 2 with a mild GDD (no language and slight motor delays), being evaluated for ASD and driving me up the wall because he's just hit toddlescence and I can't take my eyes off him for 2 seconds because he's just learnt how to throw.

magso · 14/05/2008 08:31

Hello Olismum and welcome!
My son is 8 and has a wonderful smile. He has SLD and ASD traits but no dx as yet.

secretstars · 03/06/2008 13:58

Hello all

I am new at this site so i do apologise if i make a mess of this been as though it is my first post!

I have a daughter called Olivia who is now 4 months old and i was recently diagnosed with Postnatal depression (not nice) I keep having panic attacks and thinking that i am going to die, so dreadful!

Anyhow i have been put on Citalopram anti depressants and have been on them for almost 2 weeks now, would love to hear from people who have suffered or are going through the same as me

Please get intouch

Jenny xxx

welovetelegraphpoles · 03/06/2008 14:47

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bubblagirl · 03/06/2008 15:05

hi olismum i have ds 3 who has only been diagnosed 3 weeks ago with ASD and this site has been huge help to me have had some fantastic advise and support

welcome hope you are feeling ok?

MannyMoeAndJack · 03/06/2008 15:38

Hello and welcome Olismum...my ds has quite a few letters after his name:

To give him his full title:

Master MMJ Junior, ASD, SLD, SID

Translated, these are:
ASD: A swift departure
SLD: Sweet litle darling
SID: Son is deadly!

aefondkiss · 03/06/2008 15:59

hello Olismum, I hope you find this board as helpful and supportive as I have!

I have a fairly NT dd who is 6 and a ds who is 4 and pre diagnosis(ASD possibly), he is at nursery and has one to one support there, as well as seeing salt and early years teacher weekly.

when my ds was 2 I had no idea anything was wrong at 2.3 he saw a health visitor who shocked me and started the ball rolling with all the professional help, nearly two years later we will be seeing clinical psych soon and paediatrician for possible diagnosis.

it is good to hear you're ds is getting the support and you have an approachable consultant!

Bugmum · 03/06/2008 16:08

Can I say hello too? Also new to the SN boards (been lurking for a while). DS1 (3.4) recent dx of ASD; DS2 (13 months) looks NT at the moment. Have already lost a RL friend over the dx - weird isn't it? But others have been wonderful. Have already nicked a lot of good advice from lurking!

bubblagirl · 03/06/2008 16:24

welcome Bugmum its a shame you lost a friend sall mine have been so supportive none see my ds for dis dx but for who he is although i dont see them often

hope you are ok? my ds 3.1 has just been dx 3 weeks ago so all new to me still but so far so good

lourobert · 03/06/2008 16:26

Hi,

I have a son who is 2 1/2 who has Williams syndrome and was also dx with infantile spasms (an epilepsy syndrome) when he was 5 months old.

He cannot walk and talk but becoming bright as a button and continuning all the time. Its been a rocky road coming to terms with his disability but mumsnet has been a lifeline and I feel like im finally 'getting there'.

Welcome

Seuss · 03/06/2008 16:29

Hi all I'm fairly new too but have been lurking awhile like Bugmum and have been finding this board very useful. Have DS1 (8) with ASD and DS2(5) and DD (3) who are both NT as far as can tell. Wish I'd known about boards like this when we were going through the hellish dx/statement times.

Secretstars - hope you can get in touch with people who can advise you. I found the 'baby blues' bleak enough - make sure you ask for help if you need it.

Tclanger · 03/06/2008 19:28

This reply has been deleted

Message withdrawn at poster's request.

Bugmum · 03/06/2008 20:10

Thanks for the welcomes!

Bubblagirl - yes, I'm okay (sorry to have disappeared by the time you arrived), as dx was not at all a surprise. DS1 looks fairly high functioning, although will certainly need 1-to-1 at nursery in September and I imagine further than that. But he's fabulous, as is his as-far-as-I-can-tell NT little brother, so I'm really lucky. Stressed by all the sodding red tape and hoops and crap but okay. Am lucky to live in a pretty good area for help, at least at this age (I believe it gets much harder later).

Oops, must cook adult tea!
xx

theheadgirl · 03/06/2008 20:39

Hi to everyone who's posted for first time. I have 3 DD, (12, 10, 7) and DD3 has Downs and ASD. I've found Mumsnet very entertaining in general, but the SN board specifically full of wise, supportive, GOOD people who just "get" what life is like when your child is different. Hope you all continue to post and find it helpful. And please post some photos, I love looking at other people's children!

Bugmum · 03/06/2008 20:48

headgirl - will try to remember to post pics, but just had to say how gorgeous your DD3 is (prob the others too, but the picture too weany to say for sure! ). Love the blurry one, so sweet

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