DLA WAITING TIMES THREAD 64

[zoeybrooks45]

Please feel free to add your scan date and whether it's a new claim/mandatory reconsideration/change of circumstances or renewal.
New claims (NC) - people are being told the wait time has increased to 25 weeks! I would say most are done before this though around the 20 week mark?
Mandatory reconsideration (MC) and Change of circumstances (COC) is around 20-25 weeks.
Renewals tend to be between 15-20 weeks.
If you disagree with the outcome of an MR you can appeal and go to court (tribunal)
Scan date is the date DLA scan your application forms on to their system, if you downloaded your application forms then this will be from when your award will be backdated from. If you called up for forms then the date on those is the date yours will be backdated from.
If successful and claiming universal credit (UC) please update them as this will entitle you to disabled child element adding extra to your award.

Thank you, I do think he has a high case too, it’s really impossible for me to list so many things but there’s lots of evidence where he goes through stages of intrusive or not mentally sound thoughts like ‘thinking he’s got superhero powers so he could jump off a building and survive’ or ‘he could run into a lorry but not die because he’s so strong that it would be impossible’ it’s all documented by professionals too and he genuinely believes some of these things which is very worrying and to me does show that his brain is definitely underdeveloped?! don’t even know the right word to use tbh 😞 x

Thanks for this hun, this now a renewal he was awarded before and we had no diagnosis of autism then, apparently on his ados assessment he scored really high on this , i have attached that in there aswell along with the letter from his paediatrician, a blue badge, a childminder report just hoping his iep and what they wrote for speech and language is enough. Xx hoping it’s enough xx good luck all x

3 weeks and it’s gonna be 25 weeks for my MR obviously a decline 😫I really don’t know if I have the energy for a tribunal 🙃

@Justanotherlove I think you'll find there is not cases where it has been won at tribunal for HRM for ADHD... When you Google it of course you will see a headline or a quoted line from a case where it says HRM / ADHD but if you download and open the case file you will see that ADHD was accompanied by another diagnosis which together gave evidence of arrested development of the brain... Autism is recognised as it affects many areas of the brain and many areas of development but ADHD doesn't it only affects one area of the brain and 3 areas of development but if the child also has another condition that affects other areas of development then cases have been won where it's a combination of diagnosis's adding up to the broad spectrum markers same as autism covers or the child has a genetic condition or a malformation but it's a very hard fight.. It involves lots of professionals and evidence and legislation at tribunal...
I don't know if a diagnosis of TS would also add to and help this ladies case.. She's totally allowed to fight for what she believes her child needs and deserves and take it to the first tier but it will most definitely be declined by the DM...
Also at the bottom on one of the evidence letters she's uploaded it states in blur..
Carter is a physically able child and loves to be outdoors ( I think that's what it says) carter is generally independent with most aspects of self care, I can't actually read most of it but sometimes Detailed evidence is helpful in some places and not so in others . So they could drop the care component down from HRC also but that's hard to guess as obviously none of us are deciding the claim and also I can't see half the evidence.
@Lulu444 Ahh okay that makes sense about the child not having Autism.. Good luck with your claim have a read online about smi and vuw routes to HRM and you may understand the criteria for this a little more as I've just seen above you've said you don't know what they mean which is understandable alot of this stuff is difficult to interpret isn't it... 🫶

How do you know it’s a decline am 3 weeks off my 25 weeks to have faith that’s all we can do best off luck

I just feel it in my waters. Don’t seem to have any luck. But hopefully we do get the results we deserve

Yes it's so difficult to get isn't it. I've seen posts of children getting declined because even though they're non verbal they can make a choice or tap on an iPad.

You really do need to meet every point.

@candywoo yes it's difficult to prove arrested development of the brain without a diagnosis for the qualifying criteria condition or that the condition is not even being investigated or it's been proven the child doesn't have the condition ( asd or gdd)..
The child doesn't have to be non verbal to qualify. But yes evidence can go against you alot anything positive wrote like as you say tapping on an ipad or making choices ect ect it's picked out and declined. 🤦🏻‍♀️

@PositivityRipples hope you dont mind me asking, You seem to know so much & the guidance you provide is so helpful.
My DD is 3 and has nearest description would be a syme amputation (absent left foot congenital) as well as absent right thumb and underdeveloped fingers, I have sent short simple statements provided by her consultant & plastic surgeon pretty much backing what I say regarding her walking and everyday difficulties like eating foods herself, getting dressed, Bathing etc her walking is limited & due to her age prosthetics are difficult to fit but also she refuses to wear(not been lucky to get the right weight yet) she would rather be carried or we use a stroller (awaiting for mobility centre to make one for her size) the HV wrote a very detailed report regarding her struggles & my sister wrote the statement for question 38
My question is from your knowledge would she qualify for LRM atleast?im not even sure if she would get anything as ive not come across any similar cases (im sure there's plenty) i have provided every proffessionals contact details but the worry is taking over now!TIA xx

@Nads2210 hiya.. When you say congenital do you mean " born with" as in the child was born that way? Also if child Was born that way is that a result of a defeat that happened inside the womb or a condition that is ongoing now and will progress and get worse? Also when you say syme.. Does this mean child has heel intact? Sorry for the way I've worded this 🫶

Hiya dw about the wording i sometimes can't find the "right" words x
Yes she was born with these differences & diagnosis is amniotoc band syndrome so yes occured in the womb.
Her hands will never function to the same extent or have the same dexterity as those that have fully developed fingers etc
Her foot is very much like a stump but yes she has some heel but the bone is also not formed correct as in not flat heel more like a point sticking out (causes pain & discomfort when walking outdoors)
These are life long conditions & even with surgery wont improve drastically.
Shes due surgery to "create" length for the thumb on her right hand but she also doesnt have developed toes on right foot (which is what would typically be used in these cases) so thats another battle trying to find a bone that will comply with blood flow (nerves) Thank you for taking the time to reply x

@Nads2210 aww bless her little heart ♥️🙏 Depending on how you've worded things on the claim form as this is hard to get right sometimes as using dla DM terminology is the only way to guarantee the right award cause we know the DM aren't medically trained and have no knowledge of most disabilities.. To the best of my knowledge your child would qualify for HRM under the virtually unable to walk criteria if you've been able to show through the claim form and professional evidence that the child's ability to walk is significantly restricted due to the missing foot also that you've highlighted the other factors balance issues, pain, distress, fatigue, significant discomfort, refusal ect and if you've been able to get a professional report that highlights the child's mobility limitations...
If by any chance they only award LRM take it all the way to MR and tribunal because just by what you've wrote here you and your child need and deserve HRM 🙏

@Nads2210 Also is your child already getting dla high rate care and you're putting in for mobility because the child's turned 3?

She's the blessing we didn't know we needed 🥰♥️ Thank you again!Yes the balance & other difficulties have been put in the form along with the backing from health care pros.
Honestly id just be grateful for any support we can get for her but 100% i'll be putting up a fight of she gets declined this time!No unfortunatly she doesn't receive any dla at all I did apply when she was 2 but I do think that was my own fault i filled the form out with mummy goggles so didn't really explain well enough & the big one was her plastic surgeon for her hands stating in a report she's a happy thriving young lady (which she is but the differences effect her more now) this time I've made sure not a single positive detail is mentioned about her because it really doesn't help xx

@Nads2210 LRM is from age 5.. HRM is from age 3.. So you can only apply for HRM (sorry should have wrote that above it's been a long day)

@PositivityRipples when I say short simple statement i mean something like this, This is from her orthopaedic consultant
(Iknow it was mentioned earlier about personal details but i've cropped any give away details) xx

@Nads2210 aww that's a shame as your child should have been getting the care component from younger but as I've said alot of it is based on wording and explanations and going into detail about the care needed and difficulties in getting around outside ect and obviously what professionals write but as the child is now of an age where walking would be something a child without difficulties would be doing and all the other things you now help the child with that maybe without the disability the child would be learning to do on their own you're more likely for getting awarded now as you can clearly show care and mobility needs... HRM is for a child 3 and over and as I've stated absolutely no reason what so ever why your child is wouldn't qualify under unable to walk and if not virtually unable to walk.. Good luck keep us posted 🤞🏼

Aah ok I didn't know that & would i need to do anything separatly to apply for HRM or would they consider with the application?Sorry get some rest you've been a great help & will no doubt come to you again!♥️

@Nads2210 That evidence is great short sharp and to the point statements from the professional.
No you don't need to do anything different as long as you filled in the whole form care and mobility sections they will look at both components and consider the rate of care the child qualifies for and then they will look at if the child qualifies for HRM... Absolutely no reason I can see why you won't get HRM 🙏

Thank you so much!♥️ Like many others just been stressing about whats been sent as in not pages long evidence just simple statements but like you said its straight to the point, Hopefully hear something soon & will update on here when I do, Keeping faith because she deserves it & your input honestly has put me at ease so even IF she gets declined iknow to fight tooth & nail!xx
Good luck for you & your lil one xx

Called up yesterday as was told on Monday it is with a DM just to be told that due to an error on their end with someone’s claim being scanned onto mine that my claim is no longer with a DM so they can fix the error 😭 SD 09/10

Good morning everyone. Any positive posts this morning ?

I've been thinking , is the reason why some later claims get done before earlier claims because each Decision maker has a digital pile of claims and say for example 1 DM has worked through their files quicker so they are on later dates rather than earlier ones ?

Read my post back and hope it makes sense , I'm still half asleep didn't get to sleep with the kids till 4am. I need pins for my eyes today

Just called and got straight through the lady on the phone said that im in the very last pile now before it gets picked up by a DM im nervous as hell now

I'm sure I've read before that that is exactly what happens and it's just luck if it ends up on a desk with a smaller pile otherwise it would make absolutely no sense as to why some early oct claims are waiting and a lot of late oct claims have been awarded