Downs Syndrome

[Rilith]

Hi all, New to the group.

Just wondering if there are are mums and dads that have kiddies with Downs.

My 2 year old dd has Downs and Complex heart defects that can't be repaired.

I have 3 other children and another on the way

Hello - welcome, you have your hands full

There are a few mums her whose children have Downs Syndrome, I'm sure they'll be around. My dd has a significant heart defect and a (now resolved) leg length discrepancy

Hi Rilith welocme to MN

Hi Rilith and welcome to mumsnet.

I have 2 children, DS1 is 5 and has ASD and DS2 is 7 months old and has downs syndrome and bi-lateral talipes.

This site has been a godsend for me with lots of very knowledgeable and friendly people on it.

I hope you find it as useful and enjoyable as I do!

Hello! Welcome to the SN board, hope you find it helpful. My DH works in a nursery class at a mainstream primary and has two children with Downs--he really enjoys teaching them. Our DD has developmental delay but no diagnosis.

Hi Rilith.
I am a salt who works in field of SN.
I also have a 7 year old daughter with comunication difficulties.

You have come to a great place.

Welcome aboard!

There are several parents here who have children with Down's Syndrome.

I have a 4-year-old daughter who has experienced gross and fine motor skill delays first noted at her 8-month check up.

hiya

I am mum to an almost 6yo dd with down syndrome. She was also born with a complete AVSD that was repaired when she was 8 weeks old. I also have two other dds - one is 3 and the other 1yo. I think there are some pics of dd1 on my profile. IF you click on the clipboard thingy - you will see them.

Hi
My nephew is 3 with Downs, did have heart probs but now ok but has severe hearing difficulties. My sis seems to be getting lots of support from everyone.

Just saying hello really. My DD (6) has Down Syndrome.

You will find lots of help, advice and support on here!

hi rilith, I have a little girl with DS . She had her 7th birthday last week and is in year 2 in mainstream primary. She has hearing loss and wears a bone-anchored hearing aid, her speech is pretty poor but she certainly manages to communicate despite the hurdles.

I am very sorry to hear that your dd's heart defect is inoperable - my dd was born with significant CHD but thankfully had a full repair. I can only imagine how painful it must be if this is not possible . Which hospital are you under? And I presume you're in touch with the Down's Heart Group - are you on their Yahoo group? I used to find that so helpful when we had to deal with all of dd's cardiac issues.

another vote for Downs Heart Group - they were brilliant when we were dealing with dd1's cardiac stuff.

Hi Rilith and welcome!
I have a son (8) with SLD, but he manages happily in MLD school.

Welcome Rilith. My DD3 has DS and ASD, she's 7 years old.