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DLA WAIT TIME THREAD 39

979 replies

Emmajm85 · 12/04/2024 16:57

DLA Wait Time Chat

OP posts:
Loubyloufootball · 17/04/2024 19:52

Mommy2boys30 · 17/04/2024 19:48

I got that letter 2 weeks ago and I'm 5/02, I still have 20 weeks max in my head but more like 16-18 lately

Omg looks like I am very late getting this!

Tasha0429 · 17/04/2024 19:53

Loubyloufootball · 17/04/2024 19:51

I didn’t even look at the date of the letter! I am expecting another month at the latest (fingers crossed) x

@Fee89 seen this after I posted 😂😂

Fee89 · 17/04/2024 19:54

@Tasha0429 28th or 29th? 😂

Mysticwolf9299 · 17/04/2024 19:55

Jempeech · 17/04/2024 19:50

@Mysticwolf9299 I sent similar to be honest but don’t know if it will be enough , but I mean she’s 7 and has adhd and autism I don’t get how they don’t expect them to need extra support and care as why would they get a diagnosis if not so I find it crazy when they decline with official diagnosis. Like why would they get one if they could function the same as their peers 🤪

I think it becomes quite hard as especially those that mask can go under the radar. We had to pay privately for my son to get diagnosed. Camhs still don't recognise it but everywhere else does. It's a tough game and TBF I was ready to fight, were even applying for funding for a sensory assessment for him. Just keep pushing through.

Tasha0429 · 17/04/2024 19:57

Fee89 · 17/04/2024 19:54

@Tasha0429 28th or 29th? 😂

29 my finger must of slipped 😂

Fee89 · 17/04/2024 19:58

@Loubyloufootball I have end of May/june in my head. I feel il be calling daily from 14 weeks 😂

Fee89 · 17/04/2024 19:59

@Tasha0429 Think we all just need a holiday 😫

Tasha0429 · 17/04/2024 20:02

@Fee89 I'd be happy with sleep 😂 I'm asking for to much already 🤣

Loubyloufootball · 17/04/2024 20:03

I’m slightly worried I haven’t sent enough evidence. I didn’t have it at the time however I do now but not sending it in case it holds it up further. I will do an MR with it all if need be. Anyone been successful with limited evidence but positive school support? School are very supportive. She’s now under CAMHS , SALT and OT

Loubyloufootball · 17/04/2024 20:05

Fee89 · 17/04/2024 19:58

@Loubyloufootball I have end of May/june in my head. I feel il be calling daily from 14 weeks 😂

Absolutely 👍

Fee89 · 17/04/2024 20:07

@Tasha0429 Sleep is a luxury 😂 x

@Loubyloufootball I think everyone worries about the evidence they sent. I sent some with claim then thought its not enough so printed out loads more to send that they got on 13th march 😂 i was petty with my evidence though x

Tasha0429 · 17/04/2024 20:08

Loubyloufootball · 17/04/2024 20:03

I’m slightly worried I haven’t sent enough evidence. I didn’t have it at the time however I do now but not sending it in case it holds it up further. I will do an MR with it all if need be. Anyone been successful with limited evidence but positive school support? School are very supportive. She’s now under CAMHS , SALT and OT

Yesss! I got HRC with Harley any evidence other than nursery. Few years ago now, I've said this loads, they don't read all evidence it's skimmed they wouldn't have time, so aslong as yours is relevant I wouldn't worry 💗

Definitely keep it incase then bang it all in their face at MR I intend to do the same if unsuccessful 💪💪

Tasha0429 · 17/04/2024 20:11

Fee89 · 17/04/2024 20:07

@Tasha0429 Sleep is a luxury 😂 x

@Loubyloufootball I think everyone worries about the evidence they sent. I sent some with claim then thought its not enough so printed out loads more to send that they got on 13th march 😂 i was petty with my evidence though x

@Fee89 sleep is for the weak 😂💪

Loubyloufootball · 17/04/2024 20:13

Tasha0429 · 17/04/2024 20:08

Yesss! I got HRC with Harley any evidence other than nursery. Few years ago now, I've said this loads, they don't read all evidence it's skimmed they wouldn't have time, so aslong as yours is relevant I wouldn't worry 💗

Definitely keep it incase then bang it all in their face at MR I intend to do the same if unsuccessful 💪💪

Brilliant! That’s so encouraging 💪

Fee89 · 17/04/2024 20:16

@Tasha0429 i'l happily admit im weak if it means i get full night sleep 😂

Tasha0429 · 17/04/2024 20:20

@Loubyloufootball your welcome 💪💪💗

@Fee89 😂 to be fair I bloody need it too 😭 but yeah xx

Lolipop27 · 17/04/2024 20:38

16 week today.... surely can't be much longer

Momtotwobeautifulkids · 17/04/2024 20:52

BeWarmCat · 17/04/2024 18:58

Try calling them tomorrow and ask for a message to be pushed through to your mangers team x

Ok thank you x

Fee89 · 17/04/2024 20:59

@Lolipop27 Fingers crossed any day now x

CTL123 · 17/04/2024 21:06

Loubyloufootball · 17/04/2024 20:03

I’m slightly worried I haven’t sent enough evidence. I didn’t have it at the time however I do now but not sending it in case it holds it up further. I will do an MR with it all if need be. Anyone been successful with limited evidence but positive school support? School are very supportive. She’s now under CAMHS , SALT and OT

Yes, I pretty much just sent through his adhd diagnosis and SNAP test results which showed his ODD and autistic traits, he hasn’t been diagnosed with autism yet though, he’s been under the SEN team prior to his diagnosis as they just knew and have been amazing, I just made sure I wrote as much as I could about how he is and I kept a diary recently incase I needed to do an MR, I worried so much about whether or not I had sent enough that’s why I started the diary

CoralSheep · 17/04/2024 21:24

Chickapea77 · 17/04/2024 16:37

@CoralSheep my son was diagnosed with ASD when he was 3 and awarded DLA, it’s been a struggle from day one for us. Puberty brings new challenges and lockdowns did set him back so much and at the worst possible time. Fought to get him a statement to guarantee the right secondary placement but the LEA totally manipulated and gaslit me to put him in an unsuitable school.
He was excluded on day 2 and I had to get him on his first day back because he gave himself a concussion already at 9am. Refused to send him again unless they guaranteed his safety but he virtually spent the school year at home (only going 1hr a day). How I survived, I don’t know!

Through all this, it never occurred to me that with his severe needs he should be receiving more help until his new teacher questioned why we didn’t have a blue badge and looked so surprised my son was not on high rates. She wasn’t judging or anything but I still feel like I haven’t fought hard enough.

Aww bless you both, sounds like it's been a nightmare! Hopefully you guys get the rate he deserves! It's so hard constantly trying to fight to be heard xx

Loubyloufootball · 17/04/2024 22:03

CTL123 · 17/04/2024 21:06

Yes, I pretty much just sent through his adhd diagnosis and SNAP test results which showed his ODD and autistic traits, he hasn’t been diagnosed with autism yet though, he’s been under the SEN team prior to his diagnosis as they just knew and have been amazing, I just made sure I wrote as much as I could about how he is and I kept a diary recently incase I needed to do an MR, I worried so much about whether or not I had sent enough that’s why I started the diary

Aah, thank you. I have been doing the same re: diary. We don’t have any diagnosis but I’m 100% we will get one which will be a relief to help her understand why she is different :(
Shame we didn’t realise for years :(

Anxiouslywaitingmum · 17/04/2024 22:59

CTL123 · 17/04/2024 21:06

Yes, I pretty much just sent through his adhd diagnosis and SNAP test results which showed his ODD and autistic traits, he hasn’t been diagnosed with autism yet though, he’s been under the SEN team prior to his diagnosis as they just knew and have been amazing, I just made sure I wrote as much as I could about how he is and I kept a diary recently incase I needed to do an MR, I worried so much about whether or not I had sent enough that’s why I started the diary

My son has ODD, what's the snap test? Is it like Connors questionnaire?
My son masks at school so our connors questionnaire were polar opposites 🤦🏻‍♀️

Persianpoppy · 18/04/2024 06:17

[Scan Date 04/01]

Good morning you lovely bunch!
Another day and hopefully good news for some of us!
Already on my first espresso of the morning! Need to try distract myself so I'm not calling them again.. or should I? 👀 I rang last Monday! Feel like I haven't harassed them enough!

Channy2777 · 18/04/2024 06:27

I keep telling myself not to phone but I know I will phoned mon and wed so I need to keep myself occupied the waiting is driving me mad good luck all waiting to hear decision hopefully not long now