DLA Autism and ADHD worried

[Alldoooomed]

Hi everyone. I have an 8 year old daughter recently diagnosed with ASD and ADHD. I've been waiting over 3 months to hear re my DLA application and worried this means it may not be successful? She needs support day and night and supervision whilst out and about. She is very bright, in mainstream school but this doesn't translate to basic care or socially. She can't really dress herself, needs reminders for basics such as toilet, staying clean, often needs to be fed as too distracted to eat, wakes multiple times at night, no sense of safety, no social skills, needs a lot of support to manage normal day to day actvities and so on. She is magnificent and perfect in every way to us but I'm just highlighting the issues re our application for DLA that we hope can fund therapy for her. Anyone been waiting an age and worried its a bad sign or any words of wisdom appreciated! Thank you!

Did you get confirmation they’d received your application?

The process takes 12-14 weeks so you’re still in that period by the sound of it.

Thank you! Yes, I got the letter and I've had 3x texts to say they are still looking at the claim. We are at 14 weeks now. Thanks

I called and after over an hr on hold I got through and the person I spoke to said min wait is 14 weeks! So nervous that after all this she won't get a decision awarding. All I can do is hope!

Waits are long at the moment, most are waiting longer, it doesn’t mean DD won’t be awarded DLA.

Thank you.

Thought I'd update - got a text to say my DD has been awarded DLA. Assuming I will get a letter very soon!

that's brilliant! If you ring up they should be able to tell you what you've been awarded, and importantly how long for.

That’s great news.

Thank you! I called and after waiting nearly 1.5 hrs I was told middle rate care, low rate mobility until 2027, really pleased!

Hi OP, pleased you got a response. Can I ask, did you get a call to ask questions about DD after you sent the form?
I've literally just filled in the form for DS and honestly, I found it draining. I'll need to mentally prepare if there's a phone assessment too. I'm aware there's a long wait time, I'm expecting that.

Hi, No I didn't get a call or anything at any point. Just a text to say we had been awarded, after filling out the form, this took 15 weeks x

Thank you 😊 that is a relief, its a lot to go through

Hi did u receive award?

Hi there my son is 13 years and have been diagnosed with autism and adhad applied for Dla but have waiting for reply since October
but would like to know from when they will count the 15 weeks I rang them on 14 September and send the form 20 October anyone with any glues please

@Yooyoo wait is 20 weeks ish I applied sept they got on the 7th nearly 19 weeks this week, haven’t heard yet fingers crossed everyone gets awarded x

Hi, wait times are from the date they receive the forms. Wait time was 18 weeks, seems to be 20 now, despite what the letter says. Still strongly believe those letter templates need changing, might help their call queues. Good luck!