**Trace**

[TotalChaos]

Good luck with the appointment today, hope it goes OK!

aww thank you its been a long day had to travel 25 miles to childrens hospital, her lumber punture not back yet, but nero thinks she as a rare binign disorder a chemicel inbalance, hes going to ring next week to confim we meds to take! but its good news she may grow out of it by 7 years, but she still as sezures theres only 4 children in uk with this.

then tonight shes been to local hospital for her deformed hip, back on wed for celiac tests too!

again thank you its nice to know some ones thinking of us

blimey you've got a busy week. glad that the neuro seems to have got to the bottom of your DD's problems.

trace while I'm sorry to hear you have so much to worry about at least finally you're getting some answers.
Good luck honey pie with all that this brings

most of are week we like this as if its not app shes in having posture or sezure

Piffle long time no see hows you all? my dd reminds me of your dd for how tiny is.

aw trace, best things in small packages
How big is Chloe now?
How is she doing aside from all the interventions is she doing ok? How the heck are you coping?
And we thought the TTC days were tough huh?

we i think shes ok! shes a loverly smiley little angel shes 8 months and weighs 13lb 5oz, she is behind with her moverments, but shes bright as a button, sh as got bad skin with reaction, and allergic to alsorts ,as silent reflux , shes on 24 hour watch as she can stop breathing, but we coping god i could go on for ever,.

bet you wished you didnt ask

trace - glad you had a small step forward yesterday

dd sounds fab and a proper little battler.

Don't think I've seen your posts about her hip - what's going on there? dd has had hip problems - not a structural problem as such - a consequence of a pronnlem with her leg as awhole. Have you got to do the harness stuff?

a pronnlem ? a problem

hi Saggarmakersbottomknocker we got a letter xmas eve telling us her hips abnormal went yesterday shes too old for harness but carnt cast her cos she postures, may do more damage, so hoping it dont dislicate any more yet, go back in 6 months for another xray if it dont go back she needs a opp, one leg is longer than other

ah dd had one leg longer than the other - she had a clot that stopped the growth. Her hip problem was because of the leg whereas it sounds like your dd's leg is shorter because of the hip.

Has anyone pointed you in the direction of the STEPS website?

yes thats right, my brother had simlar to your dd his was perthesed hip, no whats steps?

Steps website. Loads of info about hip conditions and treatment - there's a message board and you can often buy second hand equipment - car seats etc for when they have a harness or a bar.

thank you ill take a look later am going for a walk now! speak soon

You're welcome Enjoy your walk.