where can i get more info?

[duvetwoman]

We are pregnant with our econd child and he has been diagnosed with Cystic-adenomatoid malformation at our 20 week scan. I really need to speak with other parents who have had experience of this, but as its a rare condition i am not finding much on the internet apart from medicall stuff. Can anyone help?

Would it be worth posting with the syndrome name in the thread title I wonder?

Also contact a familymay be good as they can often put aprents of chidlren with rare conditions in touch

Hello duvetwoman

Don't know if you are still on mn but just wanted to say that my best friend has just given birth to a baby who was diagnosed with ccam late in her pregnancy and he is now recovering well.

SR