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Primary school auties thread 9 - spring / summer 2022.

1000 replies

danni0509 · 12/03/2022 09:23

Thread 9.

Links to previous threads below.

For the parents / carers of children with additional needs, most of us have asd / adhd children in primary school, but anybody is welcome to join us to chat x

Thread 1
www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2
www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3
www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4
www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5
www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Thread 6
www.mumsnet.com/Talk/special_needs/4166833-Primary-school-auties-spring-2021-and-beyond-thread-6?pg=1

Thread 7
www.mumsnet.com/Talk/special_needs/4303826-Primary-school-auties-summer-and-the-new-academic-year-thread-7

Thread 8
www.mumsnet.com/Talk/special_needs/4422100-Primary-school-auties-step-into-Christmas-and-the-New-Year-thread-8

OP posts:
openupmyeagereyes · 03/06/2022 07:49

dimples have you started Stranger Things? I’m loving it.

livpotter · 03/06/2022 09:45

Open** I just finished it, best season yet I reckon!

There is a lot of bribery involved in getting ds out of the house. Mainly involves getting a toy from the shop!

openupmyeagereyes · 03/06/2022 11:56

dimples we haven't finished yet, we may be on about ep 7. I think there are more episodes to drop in a month or two but this is the last series Sad

openupmyeagereyes · 03/06/2022 11:58

We used to have to buy lots of toys when we went out, thankfully ds seems to have moved off that for now at least.

dimples76 · 03/06/2022 17:25

I haven't got very far with this series of Stranger Things because DD is taking ages to settle then seems to wake up half an hour after I have settled DS.

openupmyeagereyes · 03/06/2022 17:37

Whoops, sorry. That was liv

openupmyeagereyes · 04/06/2022 07:26

We finished the last of the current episodes last night, so good. We will start Obi Wan Kenobi next.

danni0509 · 05/06/2022 09:39

Is it back to school for dcs tomorrow? It is here.

Ds hasn’t been bad overall, but it will be nice to have some quiet time on my own when he’s at school.

OP posts:
danni0509 · 05/06/2022 09:42

I don’t watch any tv programmes really other than Eastenders and corro, and of course love island when it starts tomorrow night.

I am on the other hand addicted to TikTok. Weightloss before and afters and home exercise videos, and air fryer recipes, I could watch them all day.

OP posts:
openupmyeagereyes · 05/06/2022 10:02

danni ds is back Tuesday. I talked to him this morning about it and he’s already saying he doesn’t want to go back and he wants to stay at home and do school with the cat.

Glad your half term break has been ok. I haven’t got TikTok but I did get a bit addicted to Instagram. I hate the update though so I’m on it a lot less since.

openupmyeagereyes · 05/06/2022 10:15

And after 7 or 8 weeks playing a new game, ds has gone back to the previous game he was obsessed with. Dh and I are a bit gutted!

dimples76 · 05/06/2022 11:04

DS is back on Tuesday too. It's been a good week overall. Having the gardening gang come around was definitely the best bit. The only problem now is that I have two massive builders sacks full of garden waste that are too heavy for me to lift on my own and even if I could pick them up I can't fit either of them in car with the DCs. My sister and BIL were going to help this weekend but are ill.

DS just watched the documentary with private film of the Royal family with me - he was a lovely viewing companion. It is v surprising the things that sometimes catch his interest. However, the old obsessions endure here. It's his birthday next week and my stepmother asked what he wanted and I told her that he has asked for bells and whistles . She complained that, that is what he asks for every year - she doesn't really get DS.

carriebradshawwithlessshoes · 05/06/2022 13:50

We are back from hols! Overall good once we got DS sorted with the antibiotics. It was nice to get away although I do find being amongst other kids very depressing often, don’t you all? Watching them playing on the beach whilst DS just sifts sand. Listening to them excitedly chattering to parents whilst DS is of course saying nothing but often making vocalisations that mean nothing and so catch peoples attention and eye. Of course I don’t want him to be silent but I remember a post from a poster years ago on here who had a non verbal child at the time and she said he also made verbalisations that she didn’t want him to stop and her SALT said not to stop him because they were word sounds but nevertheless it depressed her as it induced the ‘lemon sucking faces’ from the general public.

also honestly, DS… just doesn’t sit! So we were in this beautiful apartment, all he wanted to do was tear around, crashing the glass door dividing the lounge and kitchen into the table by flinging it open, then he was obsessed with the microwave which he could reach. I’d try and get him to sit on the sofa but he would wrestle me off then run into the bathroom then kitchen…, Just exhausting! I suppose more like a 2 year old. Wanted to climb on a window ledge where there were floor to ceiling views of the river, that type of stuff!! I said to DH I would give anything for him just to be interested in anything for long enough to sit down for 5 mins with it. Anything at all!

school tomorrow, transition morning Wednesday. I hope they aren’t like FFS after a couple of hours with him. Dannis stories over the year has made me v nervous!!

carriebradshawwithlessshoes · 05/06/2022 13:52

I want strategies from them as to how to manage this type of stuff not complaints about it! Hope I’m not expecting too much…..!

SusanStoHelitsPoker · 05/06/2022 15:14

Hello all! We have just got back from glamping, lovely lovely time and only one minor fractious moment because I said DS had to tell me when he was going to the play area, apparently embarrassing him in front of the other children! Had some great days out in the woods and doing activities, shame to come back really, but the rain made home seem more enticing this morning!
DS back to school tomorrow and I have to remember how to do my job after a week off!!
@carriebradshawwithlessshoes DS speaks and natters on and on, but we still get the looks because he talks about such odd things often! He hums a lot as well etc. He has got a jingle stuck in his head now and sings it a lot! We played lots of boardgames and card games in the evenings at the campsite and got some funny looks for that too! I guess with my DS, it depends how regulated he is before we get to a place and how tired etc. E.g. Dinner in restaurant on first night went better than second night because he was less tired. Also telling my DS to sit down too many times makes him heightened, I think because it's then perceived as a demand, causing anxiety and the hyper response. Does he like cards or travel games or anything? Or lego or cars? I know it's hard though, when DS isn't regulated he likes to spin, which is tricky in some properties!! Good luck with the transition to the new school, they will most likely have some really good strategies to try, even things like sensory circuits can really help, and DS' school integrate sensory stuff throughout his day because he really needs the input.

carriebradshawwithlessshoes · 05/06/2022 15:27

No he won’t sit for anything really, occasionally to look at a book but not for long. So, I took a car, the apartment was wood floors so you would think he would have loved it. I gave him the car and he just sighed, knelt for a second, pushed it once then got back up again to charge round. I sat with him and said let’s play, he was edging backwards away from me, yes giving the car the odd push but I couid see he was trying to get from kneeling to squatting within a few seconds so that he could spring to his feet and dash off. Lego he finds even more unappealing. This is what I mean when I say he’s no imagination which doesn’t help… at it’s most basic playing with cars is no more than pushing a piece of plastic around and Lego is no more than sticking bits of plastic together. I think that’s how DS sees it ie pointless.

glad you had a fab time Susan, sounds lovely. Will he go to the play area on his own to play? That’s another of my dreams but we are way off!

SusanStoHelitsPoker · 05/06/2022 15:40

Yes he wanted to this time @carriebradshawwithlessshoes but it's a very small campsite and he wouldn't go in at all when the other kids were there. He also often wanted DH to go and play with him.
What about car racing? DS got really into that recently as he loves races and racing about! Or something more sensory like gloop or something? I remember DS being completely fascinated by water when he was younger but having no idea of boundaries so that was hard, e.g. with water pistols, not realising that actually soaking someone isn't a joke! He loves mixing colours too, always has, so we often do coloured bath bombs in the bath. Magnetic shapes that clip together are good too and pop tubes?

carriebradshawwithlessshoes · 05/06/2022 15:50

Yes he would do the sensory stuff but it requires supervision and not really a posh apartment activity! I’d just love him to do something where I can take my eyes off him even for 20 mins! The car racing he may engage in but only briefly, he’s a law unto himself. He gets far more pleasure (sensory pleasure I suppose) from charging around and as Dimples mentioned not long ago touching and pulling things, the first thing we had to do when we got in to the apartment was move all the ornaments etc.

since the Adhd meds were tried (we have stopped them) or possibly just a coincidence he has become obsessed again with mouthing EVERYTHING which again requires constant supervision/ vigilance from us. We are giving him a different sleep med which can cause a dry mouth and I do wonder if this exacerbates it. Even when he’s nothing in his mouth he is turning his tongue around, sticking it up to try and touch his nose, to the left and right and so on, it’s like there’s something going on in his mouth that is making him very aware of it.

carriebradshawwithlessshoes · 05/06/2022 15:54

See, he possibly would go into the play area but would have some random thing in his mouth within seconds! If another child was eating or drinking he would also just go and take it off them, things like that. I have got those reasons to be right behind him as opposed to him being anxious or unwilling to go!

SusanStoHelitsPoker · 05/06/2022 15:56

Yep we move the ornaments too as the impulse control is still an issue! I know what you mean about sensory stuff being a bit messy but the squishy balls and pop pads are quite good and they're mess free. For mouthing, we still use lots of different chewelry stuff and redirect by just handing them over to DS (saying anything causes him to strop out!) I'm still unsure as to whether he has adhd or not but he can sit for periods if its something he wants to do, so I think for my DS it's just that he views lots of things as pointless, but of course it could be hyper focus as well.

carriebradshawwithlessshoes · 05/06/2022 15:59

Does he mouth Susan? I can’t remember you saying that but may have missed.

SusanStoHelitsPoker · 05/06/2022 16:02

Yes he does, different amounts depending on how stressed or disregulated he is, but the chewelry is really good. I even managed to get a glow in the dark one!

carriebradshawwithlessshoes · 05/06/2022 16:03

Sometimes I think I should trust him a bit more so left him for minutes the other day. I found him gnawing at the top of the dettol
spray, fortunately they are firmly affixed to the bottle but had it come off I have no doubt he would have drunk the whole thing…

SusanStoHelitsPoker · 05/06/2022 16:23

Yes all our cleaning products are locked away and not left about. We also have no rugs etc as DS just puts them over himself and runs about!!

carriebradshawwithlessshoes · 05/06/2022 16:28

Bless him Susan that is actually quite funny and fun for him, I see that!!! DS would love that one too! 🤣

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