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Original poster

been to Great Ormond Street today

21 replies

mieow · 09/11/2004 21:16

And they are not going to put DS back on the waiting list for Botox next year He has started the progession of CP (as they get bigger) he has dytonic feeling muscles in his left foot, and I have to go back tomorrow to get a fixed AFo made for him. They also said that they may have to refer him to the orthopaedic surgeon.
They said his tiredness apon walking too far is part and parcel of the CP.
Oh well, tomorrow maybe better!!

OP posts:
Chocol8 · 09/11/2004 21:22

Oh Mieow - i'm so sorry. Poor you and DS. I'm sorry, I don't know anything about CP, but I am thinking of you and your DS. (((((((((((hugs)))))))))))). xxx

Hulababy · 09/11/2004 21:24

So sorry.

Dingle · 09/11/2004 21:25

Mieow,,more hugs from me.I'll be thinking of you tomorrow!

wobblyknicks · 09/11/2004 21:25

Oh no, really sorry mieow.

mrsforgetful · 09/11/2004 21:42

OH.............
when i saw this thread title i was expecting a story...i am so sad for you- though you deep down know these things will happen it is still a shock when you get to that point.

You need to tell me what the botox helps in CP...ta!

if i could give some of my life to your littleone's body i would.

keep us informed

Dingle · 09/11/2004 21:44

Ooh,,MrsF,,,you've made me cry,,what a wonderful thought!

lou33 · 09/11/2004 21:51

Sorry to hear that mieow

lou33 · 09/11/2004 21:53

Look here Mrs F

mrsforgetful · 09/11/2004 21:57

Thanks Lou....have raed that BBC site...and now understand!!

You and your links!!!

lou33 · 09/11/2004 21:57

it's easier than typing!

maomao · 09/11/2004 22:05

Oh mieow, I'm so sorry

marthamoo · 09/11/2004 22:08

I'm sorry, miaow - it sucks

chonky · 09/11/2004 22:11

Thinking of you & your ds mieow.

Original poster
mieow · 09/11/2004 22:36

you can read the article I did last year here

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Original poster
mieow · 09/11/2004 22:57

why won't they enlarge?? They do on my computer

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Original poster
mieow · 10/11/2004 06:27

Oh forgot something, the physio said that DS has flexible muscles in his hands and not enough strength to counterate for it. Which is why he strugglings with hand writing

OP posts:
fio2 · 10/11/2004 06:34

oh mieow {{{{}{}}}

misdee · 10/11/2004 07:40

mieow, would he be able to get funding for a laptop because of his handwriting differculties? didnt simon have one at SJN for his exams?

sorry to hear things didnt go so good, let me know about today.

ps, fancy some retail therepy this week?

luckymum · 10/11/2004 09:14

Mieow - sorry to hear about this

Davros · 10/11/2004 17:12

Sorry to hear this mieow. Your article on Botox was inspiring and I passed it on to a mum with a dd with cp at our horse riding session. She knew nothing about it and is now waiting for treatment thanks to you.

eidsvold · 10/11/2004 19:18

that sucks sorry to hear that.....

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