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Primary school auties : spring 2021 and beyond - thread 6

999 replies

danni0509 · 15/02/2021 20:57

Hi. New thread.

This is the continuation of the thread for parents / carers of autistic children / children with additional needs. Most of us are parents of children in year 1 / year 2.

Links to old threads

Thread 1 - www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2 - www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3 - www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4 - www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5 - www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Everyone welcome x

OP posts:
danni0509 · 18/06/2021 11:01

Or he’s climbing out when they stop but that’s because the straps weren’t tight enough so hopefully he’s stays put now it’s tightened, we shall see!

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danni0509 · 18/06/2021 11:05

They stand really clueless not knowing what to do. Don’t dare touch him or tell him off.

Maybe they don’t want to be forceful I’m not sure but if you allow ds to take the piss even in the slightest way that’s how he is with you as he knows he can get away with it! He’s in the boot / in the front seat / back in the back / back in the boot and they just both stand there!

The escort I’m not sure why she’s even got a job she’s neither use nor ornament.

I’ll just have to keep telling them / giving them instructions on how best to manage him.

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openupmyeagereyes · 18/06/2021 11:07

danni ds has been up since 3:30 today.

Was she at least on time this morning? Otherwise it sounds like you might be making progress assuming they remember to do everything that you've told them.

openupmyeagereyes · 18/06/2021 11:07

Sorry, crossed post. It sounds like they have a lot to learn!

danni0509 · 18/06/2021 11:22

Yes she came at 9 this morning so bit later than the other driver but he’ll still be on time if she gets him at that time. Providing its smooth traffic x

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openupmyeagereyes · 18/06/2021 21:11

danni I hope drop off was better today.

liv how big is your ds’ school? Is it a primary or all the way through?

I spoke to the play therapist and hoping to start next week though 12 on Thursdays is not exactly ideal given it’s 30 mins away. Also spoke to ds and managed to get him to talk a bit more but unfortunately school are being a bit difficult. Waiting to give a calm, considered reply rather than an angry, pissed off one!

livpotter · 18/06/2021 22:43

Open there are just over 100 kids total and it goes from 5-19 years old.

danni0509 · 19/06/2021 11:26

Dh has tested positive for covid (there is an outbreak at his work) he wasn’t feeling too good yesterday then work contacted him to let him know so anyway he went and had a test yesterday afternoon and he’s had his result back this morning.

So ds is off school now until Tuesday 28th June. Track and trace have phoned and sent us emails etc.

😒

OP posts:
danni0509 · 19/06/2021 11:58

I don’t know what’s worse spending 10 days stuck in with ds or 10 days stuck in with Dh! 😂

Or both 😂😔😳

Send me 10 days strength xx

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danni0509 · 19/06/2021 13:29

I mean he goes back to school Tuesday 29th... don’t know my head from my arse

OP posts:
MagratGarlikInDisguise · 19/06/2021 13:30

Much strength being sent @danni0509!!!

openupmyeagereyes · 19/06/2021 14:16

Oh no danni! Much strength being sent from here too. I hope you all stay well and that your isolation period doesn't have to be any longer than that.

You need to make a plan of how to keep ds busy. Will dh work from home or is it not that sort of job?

danni0509 · 19/06/2021 15:18

Thanks both x

He works with the boats / lorries loading etc so it’s like really manual work open so not possible to do it at home, his whole shift are off, a few have tested positive now.

Dh has had 1 vaccine a fortnight ago so don’t think he has much / if any protection, I’m double vaccinated (last vaccine was 5 weeks ago) so hopefully should be ok! And ds well, I’m fairly sure corona will run a mile from him! 😂 nhs told me to test me and ds but ds won’t let me put a cotton bud in his ear never mind up his nose he’s a nightmare! So I’ll have to leave him and I’ll get a test tomorrow / Monday.

Me and ds don’t have any symptoms (yet)

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livpotter · 19/06/2021 15:19

Oh no danni, good luck!

danni0509 · 19/06/2021 15:20

I’ve got a few worksheets / workbooks here and some SALT blank level activity sheets so I’ll do those with ds next week and a bit of reading with him but I’m sure it will be mostly time in the garden / trampoline / iPad.

Its forecast rain for most of next week but Monday / Tuesday sunny so I’ll have to make the most of that whilst it lasts.

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danni0509 · 19/06/2021 15:21

Thanks Liv x

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dimples76 · 19/06/2021 18:48

What rotten luck Danni

danni0509 · 19/06/2021 19:53

I emailed ds teacher, didn’t think he would reply being the weekend but he emailed back asked me to get ds a test as a positive result would help them to close the class bubble etc.

He said ds needs to stay off school regardless etc, i said i know and sent him test and trace email to say ds can go back to school Tuesday 29th.

I get why school asked for ds to have a test, but ds will not have a test. I do mean that aswell, I can’t cut his fingers / toes / hair, he doesn’t let me wash his hair / hates me brushing his hair / struggle to do his teeth although he’s better with the teeth now that’s only taken 7 years of twice a day for him to accept it!

Everything is a total nightmare, I have to do it all when he’s asleep and wash his hair by squeezing water off the flannel onto his head when he’s in the bath and his head is covered in cradle cap because the shampoo doesn’t get properly rinsed and I can’t get the cradle cap out etc. His hair is long and curly it’s near his shoulders! Personal care is a real struggle, I can only do my best! Shit like that keeps me awake at night worrying about him looking scruffy and people judging us.

So no ds will not be having a test!

He’s too strong to pin down and it’s too traumatic, I pinned him and swabbed him last august when he had a cough (a few days before they went back to school and I knew school would not let him in with a hacking cough) so I ordered a home test and pinned him and I’ll never do it again, it made his nose bleed he went that mad and he didn’t come near me for days, everytime I went anywhere close to him he was flinching from me. He kept waking up crying for weeks and he stills talks about it now, he’s terrified of people in masks and think they are going to swab him, it genuinely traumatised him.

Ds has no symptoms anyway but even if he had I wouldn’t test him.

OP posts:
livpotter · 19/06/2021 21:26

There's no way ds would let me test him either danni. Not even worth trying!

dimples76 · 19/06/2021 22:21

I tested DS and DD earlier this year as they both had temperatures. It was v stressful all around. I only persisted as I couldn't bear the thought of isolating again - if I had to isolate any way there's no way I would have done it and I certainly wouldn't do it again.

openupmyeagereyes · 20/06/2021 06:10

It’s so difficult danni. Is a home test up the nose after he falls asleep doable? Hopefully the school understands.

I had our head teacher asking me to get ds tested back in Dec after I tested positive. Back then they were only testing with symptoms. I spoke to a lady on 119 (?) and she said not to put him through it. When I tested him at a later date he was fine (much less so the second time) but I had expected him to be similar to all your dc and was dreading it.

I hope you’re all feeling ok. Is dh very unwell?

openupmyeagereyes · 20/06/2021 06:12

For me the anxiety about symptoms worsening was the worst. I was actually not unwell at all. I was obsessively using my O2 monitor even though my breathing was perfectly fine.

openupmyeagereyes · 20/06/2021 06:16

The other thing was because it was a Monday and ds was symptomless they would have used the test date and ds had already not been in school for two days prior. I guess the school could have closed the bubble but technically they wouldn’t have needed to.

danni0509 · 20/06/2021 07:49

He’s mostly been in bed for 2 days, he’s got headache, sore throat, double vision, feels sick and dizzy (I’m just trying to think of the other symptoms he keeps whining going on about, he’s got a temperature, he’s sweating, no energy and he can’t swallow, so basically it reminds me of a nasty version of man flu!

I’ve got an oxygen thingy so ill keep an eye with that.

OP posts:
danni0509 · 20/06/2021 07:54

Open did your Dh get it from you? (I know ds didn’t)

I feel fine, so does ds.

Dh hasn’t been keeping his distance though, I caught him swigging my water yesterday that I had been drinking unknowing he had been drinking it too! He’s a twit.

I’ve slept in the same bed as him still, I had my fan on last night and then I thought should I have this on it’s probably wafting his virus all over!

Oh well I suppose it is what it is.

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