Primary school auties : spring 2021 and beyond - thread 6

[danni0509]

Hi. New thread.

This is the continuation of the thread for parents / carers of autistic children / children with additional needs. Most of us are parents of children in year 1 / year 2.

Links to old threads

Thread 1 - www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2 - www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3 - www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4 - www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5 - www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Everyone welcome x

I’m just going to buy one of those little red boxes for over the seatbelt lock on the seat (iykwim?) I have one in my car.

I don’t want the normal belt off him as that’s what protects him if there is a crash.

So I’ll buy the taxi one of those now.

Oh no, danni, did they say how the journey had gone in the morning? Hopefully he can settle down with all of his favourite comforting things at home.

Ds had a great day at school, I'm so happy. He went up another book band too

Fab news open! 😊

That's great news @openupmyeagereyes! Hooray!
Sorry DS had such a stressful return journey @danni0509 but glad you got to have a bit of time to yourself earlier. I got my eyebrows waxed the other day and had a stroll round town alone, it really made all the difference (especially when DS was being silly again last night and getting his toys to hit me, resulting in me threatening to put one in the bin and him getting waaay more upset than I expected argh)! We are back to school and work tomorrow so will see how it all goes.

Brilliant open! Hope the rest of the week goes as smoothly!

What a nightmare danni. Ds has now learnt to undo all his seatbelts including the crelling so I dread taking him in the car! Could he have a transitional toy to take in the car to focus on? Long shot but sometimes it helps ds.

Magrat I feel you, we're having some challenging behaviour here too and back to school tomorrow after an inset day. Hope tomorrow goes better!

Absolutely dreading attempting to get ds into school tomorrow

Magrat and liv good luck for tomorrow.

liv at seatbelts. What a nightmare!

FFS. Day two is a disaster already.

So bloody sick of this.

Right with you there open!! Hitting kicking spitting, refusing to get on the bus

liv it must be so stressful when you have transport. Did you get him in?

Magrat and danni I hope things went smoothly.

I got ds in at 9:15 before sports day started. I don’t think it was that, though maybe, because he said he only wanted to stay for sports day and come home afterwards. He was fine yesterday, I really don’t understand it. Nor do I know what I should do. All the advice is about fixing the school as if the child will always skip off happily if all their ‘needs are met’. What about kids who just want to stay home and play with their Lego?

Yeah it is open. We called it quits when we could see the other kids on the bus getting really stressed out.

We got him in by about 9.30 with a MASSIVE bribe. So he had a huge transformer box with him when he went in 🤦🏻‍♀️. I'm hoping tomorrow will be less stressful!

Well done for getting ds in open. I don't know what it is really because ds is definitely getting all his needs met at school and still the refusal happens. I agree I think all ds really wants to do is be at home with his magnetic blocks watching tv!

Sorry open & Liv for the difficult mornings.

Ds was ok this morning getting in the taxi, he let the driver strap him in and that’s all I know up to now, i dread the afternoons though to see how he’s behaved. His teacher either emails or phones every afternoon and now I have the taxi driver letting me know how he’s been on the transport too. Last nights feedback from the teacher was positive though, ds had done a good chunk of work and played nicely when he got to choose 2 friends to join him outside.

I just want to say aswell, I get fed up of reading x behaviour is because of them not having their needs met.

I don’t agree! A lot of the time x behaviour is ds being a brat.

(Sorry to be negative) but he’s never behaved so I doubt he’s had unmet needs for 7 years straight.

It’s just how he is. X

I was (being quite a depressive) talking to Dh last night saying we literally have so many issues with ds.

Toileting / sleeping / eating / behaviour / development it’s like every single area.

Nothing is ever simple.

I’ve chased up the adhd appointment as I should of heard by now. The child phycologist emailed back and said she will be in touch to book an appointment before the end of July. Really annoys me, she told me after may bank holiday hence why I emailed. She said she was sorry but they are working through their back log.

Ds got referred 10th March 2020 so 15 months ago.

She finished all her assessments April / May so I’m literally just waiting for an appointment now.

No worries! ill just sit ripping a bit more of my hair out in the meantime 🙄

The autism you can’t medicate they chucked a diagnosis at him when he was 3. The diagnosis I actually need so he can be medicated.......

Not that I actually want to drug my 7 year old up! But he desperately needs it or at least needs to try it.

Sorry for the million posts. I post then remember something else

Magrat I hope today went ok for you and ds.

Ds told everyone at school that I was picking him up after sports day finished prompting the school to phone me to check whether I was. I told them that if he didn't settle down to call me and they haven't but I'm still really nervous about picking him up.

I don't expect him to go tomorrow, I've asked the SENCO to call me.

Sorry that the return to school has been so rocky for most of you. DS's behaviour was awful yesterday (inset day at DS's school) but he was fine getting dressed and going in this morning. Just about to collect him so fingers crossed he has had a good day.

Hope that the call to the SENCo is productive Open. I emailed DS's class teacher and the SEnco before the hols but no replies as yet. DS has been offered music therapy through a charity (he had some Zoom sessions in the Autumn) so I have asked to collect him at 2pm on Friday to get to the centre. Hoping it helps with emotional regulation..

dimples I hope today went well.

Ds had an ok afternoon. He did low key activities like reading and Lego which is exactly what the EP report said to do at times like this. He told me he's only going to school for 'exciting events' so I don't hold out much hope for tomorrow.

Oh dear Open. DS seemed to have had a good day at school but then I made a bad decision on the way home. One of the girls and her Mum in his class asked us around for a play. I felt guilty as I have previously fobbed the Mum off so I said yes. It ended with the classmate in tears (as DS sprayed her with water), the Mum complaining that DS had damaged a plant, DS screaming and DD crying.

It's DS's birthday on Monday and I am really glad that I decided not to celebrate with anyone other than immediate family. How can he be turning 8?!

Sorry it didn’t go well dimples. Eight already, the time is going too quickly.

Good luck to everyone for school this morning!

Already refusing here. I hate school, it’s boring…

Same here open flat out refused to get on the bus

Oh liv