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Wheelchair services don't feel like fighting again

30 replies

meea · 12/10/2004 11:34

Ds2 is 2 and has problems with his muscle tone and balance.We spoke to ot about his buggy being on the verge of breaking as he is a big heavy boy.She suggested a major buggy would be ideal for him and would look into funding for him.We got a message on the answer phone last week saying that they didn't feel they could justify funding one for him. I have spoken to her this morning and she said that as he is such an able little boy and because his problems are only subtle there are lots of other children who need one more than him.I really don't feel like fighting this one but I don't have £200 to buy it myself.I have asked his hv but she knows nothing about refering to wheelchair services.
Does any one know if you can buy second hand ones from wheelchair services.

OP posts:
meea · 15/10/2004 18:24

As yet we dont have a dx his pead seems to think he may have mild cp but his mri was clear.So as yet no answers .His sleep is terrible I counted 18 wake ups one night last week.We have just started giving melatonin this week but so far it has'nt made any difference.As for his balance and muscle tone all we can get at the moment is that it is subtle and he is doing well.I will get the forms out again and have a go.

OP posts:
misdee · 15/10/2004 18:27

they are depressing arent they. have a stiff drink ready for afterwards. if you can do it, try to fill them in as if ds isnt your child IYKWIM, so you dont get too upset by it. let us know how you get on.

jakbrown · 15/10/2004 18:32

Yes, and any help, just ask. Actually, I have a photocopy of my forms- I could send them to you with the others? Obviously, my dd very different but it will give you an idea?

Dingle · 15/10/2004 19:02

meea, my dd has DS and I claimed for her when she was only 3 months old. I remember it was a nightmare how to explain her problems in comparison with another baby her age. I have a copy-so again if you were to need any help please feel free to CAT.I think it's so hard thinking of the negatives all the time but that's what you need to do-with every aspect of your life.
Don't give up on it-it would help ease your lives so surely it's got to be worth the fight.

marmet0 · 17/10/2004 09:51

Mea so sorry to hear that you not getting far if i didnt need my major you could willingly have mine. Im so angry if these so called doctors and experts had a disabled child do you think they would get the right equipment straight away to help them out? id put money on it theyd get it straight away keep trying ok also wat this make him walk do they understand about disabilities makes you wonder doesnt it ?
take care mea

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