TOF

[leepee]

anyone out there who has any knowledge/experience of babies born with TOF/VACTRL.

Sorry I can't help but will bump this up a bit in case anyone else knows.

Sorry teepee, no personal experience.

I've 'spoken' to a couple of mums on a leg length discrepancy group, some of the children have VACTERLS. There is a yahoo group here. It's US based but seems quite busy. Also have you seen www.tofs.org.uk/

Mike was me lol - forgot to change my name back.