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Here are some suggested organisations that offer expert advice on special needs.

DLA : Refused? This could help.....

4 replies

ClutterJunkie · 04/08/2007 12:36

THIS WEBSITEhas its good and bad points. it could help people who have been refused with their appeal etc.

it lists many disabilities... including ADHD, Aspergers, ASD etc....as well as physicall disabilities.

it gives a description of what THEY consider to be the way this disability presents and affects the child's life.

for me this is useful, as it is an insight into what i believe is the DLA's way of thinking.You know the DECISION_MAKERS that decide whether we do or don't get DLA.

so ...for me , reading that they consider something NOT to be a mobility/care issue...maybe with ADHD or eating problems...when in my experience of ADHD/AS IT BLOODY WELL IS!....makes me more detailed and precise in how i describe it on the form.
...whereas we are all aware we have to 'compare' our child to what is 'normal' for the age...i feel we now need to compare throughout the spectrum of disability..... so shattering what idea they have of living with ASD etc.

i hope this helps someone.

OP posts:
totaleclipse · 04/08/2007 15:05

Thanks will save this thread as DLA renewal is due In December

ClutterJunkie · 04/08/2007 16:35

YOUR WELCOME!

OP posts:
totaleclipse · 16/11/2007 10:06

About to do my renewal, so thought I would bump this

magso · 16/11/2007 10:20

Thanks gearing up to. It is quite supprising what is listed as much like average child! I think the decision makings should volunteer for all that respite that is not available! Solve 2 problems perhaps!

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