Ok so this morning the postie has brought to me the Tribunal papers which I have to fill in and return within 14 days!!!
On reading the reports on why he was refused, they have said he has been refused highest rate mobility(never asked for hi rate) because although he has difficulties and needs supervision it doesn't warrant an award.
The doctors report was from a consultant who has seen him ONCE at the hospital and this was his appointment when he went about his "Blank episodes".
I had written to them asking for reconsideration stating the following
DS1 is much slower at walking than children his own age and struggles to run. If he walk a distance he is in severe pain and discomfort and becomes very distressed.
He is frequently awake in the night in pain and discomfort in his legs and needs much comforting to calm/destress and resettle.
He is unable to ride a bike(he has little to none power in his legs) unlike kids his own age, can't cut out pictures- cant use scissors, cant catch a ball if thrown to him- doesnt then get "picked" for certain games by his piers
Standing/walking for long periods causes him pain/discomfort.
washing and dressing- he needs lots of encouragement and gets angry at himself at not being abke to manage alone,
he takes MUCH longer to eat a meal and tends to use his fingers cause he finds cutlery difficult( we also have care cutlery in the house)
He's unsteady on his feet, balance poor falls over frequently bumps into things more than kids his own age.
So do you agree that it doesnt warrant an award? I dont have the energy to appeal this. but dont want to give up the fight for my son either
ANy advice would be much appreciated