Living with the knowledge that my child's life will be short.

[Vio]

I am mom of a perfect boy , my first and only child, who is now 12 weeks old. Diagnosed with a life limiting genetic disorder and unlikely to live to celebrate his 1st birthday...finding it very hard to cope ..

I'm so so sorry Vio for you and all your family. I've just seen your page for James. What a little cutie, a most beautiful child. You can see from his cheery face that he's a lovely little chap. A poet once said that babies come down to us from heaven "trailing clouds of glory". I feel sure he's back up there now, in peace and free from pain. You must miss him most dreadfully. Be strong. Big hugs.