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Living with the knowledge that my child's life will be short.

101 replies

Vio · 26/07/2007 00:52

I am mom of a perfect boy , my first and only child, who is now 12 weeks old. Diagnosed with a life limiting genetic disorder and unlikely to live to celebrate his 1st birthday...finding it very hard to cope ..

OP posts:
Earlybird · 12/09/2007 04:15

Vio, I'm so very sorry.

Psychobabble · 12/09/2007 07:03

This reply has been deleted

Message withdrawn at poster's request.

kid · 12/09/2007 20:29

I am so sorry to hear this
I know there aren't any words that can make you feel any better, but wanted to let you know I am thinking of you along with many other MNers.

morocco · 13/09/2007 22:20

all my thoughts and prayers are with you and your family vio

Saker · 13/09/2007 22:58

I am so sorry.

weeonion · 13/09/2007 23:03

little james will be laid to rest at 9am tomorrow morning. i know many of you will be thinking of him and his mum and dad. xoxox

Vio · 19/09/2007 17:30

Thank you for everyone's support.

Just created a memorial site for my son james, please light a candle. Thanks!

OP posts:
Vio · 19/09/2007 17:30

james-terrence-lynch.gonetoosoon.co.uk/my_index.php

OP posts:
FrannyandZooey · 19/09/2007 17:37

Memorial site for James

Thought a link might help, Vio. Hope the site is some comfort to you.

Jacanne · 19/09/2007 17:45

I'm so sorry to hear about this. Thinking of you and your family. Your letter made me weep buckets - your love for him shines through it.

filthymindedvixen · 19/09/2007 17:47

so sorry Vio. Blessings to you and your family x

Tamum · 19/09/2007 17:49

I have lit a candle. I am just so sorry.

MadamePlatypus · 19/09/2007 17:53

Vio, what a really, really, really beautiful boy. I am so sorry for your loss.

WotsZePoint · 19/09/2007 17:57

Such a beautiful boy, thank you for sharing this with us
So sorry for your loss.
I have lit a candle.

needmorecoffee · 19/09/2007 19:43

I've lit a candle for James. So sorry he went so soon.

Mitchell81 · 19/09/2007 20:34

I am so sorry, he was a beautiful little boy.

yelnats · 19/09/2007 21:58

Nothing to say. your letter is lovely. Cant stop crying now. My thoughts are with you at this sad time.

PippiLangstrump · 19/09/2007 22:18

I am so so very sorry Vio. Thinking of you and your little boy with all my heart. x

1dilemma · 20/09/2007 02:22

What a beautiful little boy
May he rest in peace
I hope you and your family find the strength you need to get you through this

Jenkeywoo · 20/09/2007 14:29

I am so sorry to hear your sad news, and sorry that your lovely little boy couldn't stay with you longer. Thinking of you.

FuriousGeorge · 20/09/2007 18:51

Oh my goodness,what an absolutely beautiful baby! I am so sorry to hear of his passing.
Thinking of you all.
FG

currantbunmum · 20/09/2007 19:25

So sorry Vio, your letter to James was beautiful, don't know what else to say.

Love to you all.

Charlee · 20/09/2007 19:34

Oh God im so sorry Vio.

dukester · 20/09/2007 21:00

I am so sorry. My thoughts are with you.

laughalot · 20/09/2007 22:17

What a special little boy xxxx