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Original poster

Living with the knowledge that my child's life will be short.

101 replies

Vio · 26/07/2007 00:52

I am mom of a perfect boy , my first and only child, who is now 12 weeks old. Diagnosed with a life limiting genetic disorder and unlikely to live to celebrate his 1st birthday...finding it very hard to cope ..

OP posts:
magsi · 11/09/2007 16:03

So very sad to hear. Havn't seen this thread before but just wanted to pass on my thoughts

Blandmum · 11/09/2007 16:05

Oh sweetheart, how sad, words escape me.

All I can do is to send yo and your dear little one all the love that I can. Life is so hard sometimes

Aitch · 11/09/2007 16:09

oh dear, that is too tragic. peace and love to James and his family.

2shoes · 11/09/2007 16:13
Sad
3andnomore · 11/09/2007 16:23

Omg, poor Vio and Family and rest in peace little James.
My thoughts are with them all!

potoroo · 11/09/2007 16:42

I am so sorry to hear this. My thoughts and prayers are with you.

Cammelia · 11/09/2007 17:06

Sad Sad Sad

Saturn74 · 11/09/2007 17:29

So sorry for your loss, Vio.
Rest in peace, little James.
Thinking of you all.

dilbertina · 11/09/2007 17:35

wishing you strength. much sympathy x

Bouncingturtle · 11/09/2007 17:53
Sad
Hulababy · 11/09/2007 19:24

I am so sorry Vio

mrsdarcy · 11/09/2007 19:37

so sorry Vio

ladygrinningsoul · 11/09/2007 19:41

so sorry Vio

chonky · 11/09/2007 20:06

Sad Sad

mymatemax · 11/09/2007 20:08

Thinking of you, so sorry

supportman · 11/09/2007 21:23

So sorry for you Vio and James.

chocolatekimmy · 11/09/2007 21:27

How very, very sad. I am sure he was so loved and cared for whilst he was alive. He must have known how much you loved him.

God bless

tibni · 11/09/2007 21:35

Thinking of you x

Sidge · 11/09/2007 23:01

RIP James.

Thinking of the Vio family

TotalChaos · 11/09/2007 23:05

Very sorry to hear this.

WotsZePoint · 11/09/2007 23:17

so sad and I am not sure what to say.

My friends lost a sweet little baby girl who had life limiting problems. They kept a online diary, so their family and friends could stay in touch without being in the way IYKWIM. It helped them and their families very much through some very sad times. It was password protected, so not on full view to the whole world.

Thinking of you all.

bullet123 · 11/09/2007 23:22

. RIP little lad xx.

2mum · 11/09/2007 23:28

So sorry Vio, RIP James

Clary · 11/09/2007 23:32

so sad and sorry to hear this.

KerryMum · 11/09/2007 23:45

This reply has been deleted

Message withdrawn at poster's request.