I had my sons ADOS feedback meeting last week which has left me confused and heartbroken, he amazingly scored zero across the whole assessment which completely surprised me, they said as he can make eye contact, hold of conversation about caterpillars, play at the same activity table as another child, have a back and forth conversation with them about his interests, use imaginative play, use one object in the place of another than he shows no ASD traits and they said he has no needs what so ever he’s just a ‘little monkey’ and its my parenting.
My son is 4 iv thought since the age of one he has ASD. He had no development at all until he was 1, he didn’t talk or even babble until 2 1/2 and then it was complete sentences, he bounces when he talks to people, has epic meltdowns, if children try to play with him 9/10 he will move away or if he does play its alot of controlling play eg you pretend blah blah and i pretend blah blah (i also noticed this during his ADOS) he doesn’t seem to just play its always I’m pretending blah blah, he has alot of sensory needs, hes seen an OT who said he displayed major red flags for ASD and PDA, she diagnosed him with SPD and put him on the pathway to ASD testing. Hes also diagnosed with global developmental delay.
Im confused how they can say he has nothing when he has diagnosis’ of other things they said that the diagnosis’ are wrong and i need to go on parenting courses to reverse his behaviour as its just behavioural issues. I dont agree with this i have 2 other children 1 with alot of processing diagnosis’ and the other is ‘normal’ if it was my parenting surely they would all have behavioural issues? My youngest lashes out, shows challenging behaviour and epic meltdowns in all settings. He also has an EHCP which I’m not been funny if the education psychologist and everyone else involved in agreeing to an EHCP didn’t see or gather evidence to prove he has complex needs he wouldn’t have received one.
His school assessment/observations by ADOS team was done as his new school which he had only attended at that point for 3/4 weeks even his school said it was the honeymoon period, now 7 weeks into been there and now knowing the routine his challenging behaviour is coming through as well as needing extra safe seat time and reminding of the behave chart system. His teacher said she was surprised he scored zero and to talk to SENCO and his GP about a second opinion.
What would you do in my situation, would you believe them that hes not autistic and has no needs at all and that its down to my parenting or go and seek a second opinion? Im in England