For those that don't know, my dd is physically disabled and doubly incontinent. She started nursery after the easter term with my mum acting as her carer until they got someone in, it became evident that they had no intention of doing this while my mum was helping out so she stopped doing it, dd stopped going to nursery until they sorted it.They also didn't have adequate changing facilities for her.
I had a meeting with the head and dd's physio, the head assured me they had someone to start with her in September, and the work on the disabled toilet/changing room they were working on would be finished.
Physio told head that they would need a changing bed in there, but they would have to speak to OT about it.
Physio got onto social services OT dept about getting OT out, the waiting list is horrendous and we were still waiting for one at that point.
Before the end of summer term, physio called me said she had spoken to OT but she will be on holiday until term finishes and they are arranging to see head over the summer.
I waited and waited to hear something from someone, anyone!!! lol
I heard nothing at all, in the end I called the school and spoke to the head as it was getting very close to starting school time and I wanted to check all was in place. Turns out he has spent a large chunk of his summer holidays trying to get hold of either the physio or the OT and has had no luck, so although we have a carer to start and a disabled toilet, we dont have any changing facilities, so she can't start!!
I called physio who is conveniently on holiday, having never actually been given the name of our OT, I called the department and spoke to the manager.
She told me that they had just allocated one that morning!!! Oh woop de doo I'm supposed to be happy about that! lol
I told her that we had already been told we had one and why had no-one been in contact with the school or me? She said that the OT that was originally allocated was only to help with home and they hadn't relised we needed anyone for school.
She said the referral they had gotton in JANUARY! was only for home. I was angry about this, we were referred from the hospital and they knew it was for school, so I asked her if she could send me a copy of the referral so I could take it up with the hospital, she ummed and ahhed, then decided to tell me that "actually, oh look, it does say home and school" !!! Bloody woman lied to me!
She had no explanation for what has happened, but promised to get our new OT to call me asap to set up a meeting for Monday, surprise surprise I got no phone call.
I am so livid, I can't do anything until Monday now, when dd is supposed to be starting.
I know I should have chased it earlier now, but having heard nothing from the school I presumed it was all going to plan, stupid stupid me!!!
Sorry I just needed to rant!!!
Thanks for reading it, oh and does anyone know if there is anything I can do about this, with regards to complaints etc.??
Vici x