Mowat-Wilson Syndrome

[CheeseCrackersAndWine]

Hi,

I have already posted in SN chat but no response so thought I'd try here...

Anyone any experiences of this syndrome? Our DD2 (2) has had an almost certain diagnosis (blood still to be tested but geneticist was pretty certain without it). I know it's very rare so I am not holding out much hope but thought I'd give it a try!

Thanks x

Hello there, did you get a diagnosis? My grandson has just been diagnosed with MWS , he is 10 months old and I’m googling too much. Hope you are well.