Hiya this is my first ever post. This may be long winded so i do apologise. I have three children ages 14, 8 and 5. My 8 year old was a prem baby, he was born at 30 weeks, he was born with bleeds on his brain and had further bleeds once he was born. He had problems with his lungs and couldnt feed. We saw the doctor who was looking after him once he was born who told us we have to take it hour by hour. Anyway 4 weeks later we could take him home knowing that he may never walk or talk. He met most of his milestones with holding his head up weaning etc...we could never go to play and stay sessions or really go out anywhere because we would end up back at the hospital with breathing difficulties or bronchiolitis. It was like this till he was around 4. He started a lovely pre school with not many children. Trouble was he never spoke a word all the time he was there not to the staff or to children. They had concerns and we went to see a speech therapist a few times and she said he was just delayed. He went onto reception where again never spoke a word. (By the way he spoke to me and his dad and nan) school said he was a selective mute. I recorded him at home and his teacher was very surprised. Now in this time i noticed he wasnt interested in doing pictures or painting or making things out of cereal boxes like all the other children. I knew something wasnt right. He wasnt picking reading up or able to write his name or remember the alphabet which we was trying so hard with at home. So fast forward to year three. Me saying something is wrong since reception. He cant remember things, cant do phonics which has hindered his reading. Cant write very well. This is really affecting him he is a lovely boy and so caring. His so so frustrated and hard to see him struggling. He cant sleep well. His so hyper. When we go out his like a ping pong ball just bouncing. Now has come the anger with frustration which is pretty scary from the laid back boy he was a year ago. Teacher has finally said yes there is something going on where his had an assesment and it says he has significant memory problems and to go down the medical route ive been to the gp and said it sounds like he has adhd so will refer him to the community ped. He has an iep form which we have had for 2 years now im just waiting and waiting and nothing's happening. What can i do? I feel like im not able to get or provide the care i need for my little boy. Also there is autism on both my side and oh's. Sorry its been a long post im just stuck with what to do now. Thank you for reading.