Cri du chat

[Blink2316]

Just found out my 1 year old has this rare syndrome. Does anyone have any experience with this?

my DD also has a rare genetic disorder.

I found Facebook the most useful in connecting re her specific deletion. Have you checked if there is a 5p Facebook group? have you joined unique. Unique also has a Facebook group (but you can only join once you are a unique member).

I'll have a look now thanks x

hi. my sil has it. she is in her 40's. Do you know to what degree your dc has it?

Hello love. I have a 20 month old who has 5p- (cri du chat). There is a large support network on Facebook. Here is the link: m.facebook.com/groups/385907554759706?tsid=0.7719166437163949&source=typeahead