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Digeorge - 22q11 deletion, speech delay

3 replies

DLI · 28/12/2006 16:54

Hi. I have been a member of mumsnet for a while now but have not really explored the site much.

My 3yr son has digeorge syndrome and i wondered if anyone on here has any experience with the syndrome also? and if so how has it affected your child? and you

OP posts:
chonky · 28/12/2006 17:03

Hi DLI, welcome to the SN board. I have no direct experience, however have you seen India Knight's webpage? Her dd had DiGeorge Syndrome.

Isn't she talking yet?

DLI · 28/12/2006 17:08

thank you

OP posts:
SaggarClaus · 28/12/2006 18:44

DLI - hello. I don't have personal experience of a child with Digeorge but am in touch with a few via the Heartline message board, perhaps you might pop over and visit us?

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