Hi,
My 11 year old son has cerebral palsy, autism, severe learning difficulties. He has been on epilim since aged 2 and has had many very long seizures.
Not having had any absences or seizures for 2 years, our consultant recommended we wean him off epilim - which we did - and he has not had any for around 2 months now.
However, we are having reall difficulties with his sleeping habits since he came off epilim. He used to sleep through the night until around 7am - now he wakes around 2am and 'bed hops', checks on his sister in her bedroom and after lots of coaxing may sleep for another hour or so - he is then up and will not go back to bed. It is driving us mad and we are shattered having to get up so early.
Anyone have a similar experience or any knowledge as to these issues could be caused by the withdrawal of epilim.
Desperate to find a solution. My partner is not well herself as she has stage 4 ovarian cancer so all in all the sleep issue is not good for any of us!!
N