Hi everybody, JakB here. Long time no post. I wonder if you can help me? A new mum has started coming to my special toddler group and her little boy has just been diagnosed with spinal muscular atrophy. She is understandably devastated. Does anybody know anybody who has a child with this diagnosis? I have told her about Mumsnet but not sure it's the right time for her to come on here. JakB
ps Missed you all. We are OK but DD wild and won't sleep (full moon?)