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Macrocephaly - any experiences?

1 reply

hazeyjane · 10/10/2015 21:56

Ds (5) saw his geneticist on Friday. He has complex needs, and is thought to have a genetic condition, as yet undiagnosed.

One of the things she mentioned was his large head, I have mentioned it to his paed before who has seemed unconcerned.

It is over the top of the centile lines. Height he is under the bottom of the centile lines, and weight he is 50th centile.

The geneticist said she thought that ds should have a second MRI (the first was when he was 1, and was unremarkable)

Does anyone have any experience of macrocephaly?

OP posts:
2boysnamedR · 12/10/2015 09:36

No. Ds has a large head and a few of the kids dispute being tiny on scans had enlarged ventricles during pregnancy. I do wonder but MRI has never been mentioned

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