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I give ds all this to eat and i dont give a crap!!

201 replies

redbull · 11/09/2006 16:08

he has
tea in the morning and before bed
bovril
pizza (everyweek)
chips (everyweek)
crisps everyday
chocolate everyday
fruit shoots most days
sos rolls in his push chair
chinease once a week
billy bear meat
bernard matthews dinosours
youngs flipper dippers
yazoo milkshakes
i dont care if i have to bribe him with chocolate to eat i dont care if he drinks all this crap as far as im concerned with his sensory problems its a blessing he eats this

OP posts:
mumblechum · 12/09/2006 12:43

Hi, sorry I haven't read all of this thread, and don't know what the prob is with your son, Red. My ds1 had Cerebral Palsy (he died at age 7, 6yrs ago) was really hard to feed and I felt really pressured by the dietitians, docs etc because I liquidised most of his food. They kept going on about him having to learn to bite etc, but try doing that when your child is choking on a pea! I also got really pissed off when the dentist said we needed to have a little chat about his sugar intake, when in fact the problem was that it was almost impossible to get him to open his mouth to clean his teeth. With my ds2 (12), yes, he does get crisps in his satchel for break and (homemade) milkshake but WFT? it's potatoes, olive oil, milk and, ok, sugar, but it's still food!!not poison!! I really feel for everyone else with special needs kids on this thread. Till you've been thru the stress, back off! Sorry, not usually this irate.

AttilaTheMeerkat · 12/09/2006 12:44

Jimjams2,

Read your comment (and this thread) with great interest. You and I must see the same people because I've been told exactly the same:-

"And the only medical advice I've had when I've raised ds1's eating problems(no fruit, no veg, just bread) with various medics is "oh well he looks pretty healthy on it".

DS is weighed and measured each time we go to the CDC and no-one to date has said anything about him being below weight or average height. So I must be doing something right.

desperateSCOUSEwife · 12/09/2006 12:47

mumblechum sorry to hear about your little boy
I totally agree with you regarding the until you have been in the situation back off

Jimjams2 · 12/09/2006 12:51

oh mumblechum I'm so sorry to read your post. Luckily ds1 won't open his mouth for dentists so no-one knows what his teeth are doing (I dread to think!).

Attila- ds1 is very skinny, but otherwise seems (touch wood) very healthy. He has started to put on some weight now he's eating small bits of meat again. Mind you don't stray too far into the foody threads as you'll find comments like "oh well they may be OK now but you're just storing up trouble for later and your child will have all sorts of illnesses when older". Which is helpful, especially as he's pretty much untreatable.

Anyway here is other "bloody jamie oliver" thread - which made me laugh as I had forgotten about the spaghetti hoops (had an amazing success in that he ate gluten free spag hoops squashed up with toast and crisps- then 2 days later they were banned )

desperateSCOUSEwife · 12/09/2006 12:53

jimjams will your ds allow his teeth to be brushed
if not
use those oral wipes
as they are quite good
better than nothing imo tbh

Jimjams2 · 12/09/2006 12:54

He chews toothbrushes, gets through about one a week at the moment, and loves toothpaste, I try to wrestle with him to get the front ones cleaned, but the back are OK I think.

desperateSCOUSEwife · 12/09/2006 12:57

sorry off subject here but understand re the struggle to brush teeth
ds wont allow his mouth to open lol and it is a daily battle
I just wont give up iykwim
I have to watch my fingers incase they get bitten off

Jimjams2 · 12/09/2006 12:58

When he's really bad I find an electric toothbrush works quite well (I thought he's freak but he loves it).

r3dh3d · 12/09/2006 13:08

Funny, so does mine. Electric toothbrush has been a huge breakthrough in our house - gave it her as a stim toy - she had no iterest in it from that point of view but to our surprise would let us brush her teeth with it. She still flings it at the wall when "finished" of course, but the kiddies ones are semi-disposable anyway.

PeachyClairHasBadHair · 12/09/2006 13:09

Sam and Harold only like electric brushes too JimJamss, and they love toothpaste. And can get through a brush a week GGrrrrrr

tobysmumkent · 12/09/2006 13:10

Message withdrawn

tobysmumkent · 12/09/2006 13:13

Message withdrawn

dinosaur · 12/09/2006 13:49

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

mrs2shoes · 12/09/2006 14:07

mumblechum

Quadrophenia · 12/09/2006 14:13

Hi Redbull, just wanted to say that I don't think your op, or the manner in which you have adressed this is inflammatory at all, very tame infact in mn terms

mrs2shoes · 12/09/2006 14:13

desperateSCOUSEwife how great that he will eat angel delight. alot of dd's freinds won't eat anything when tube fed.
To give you hope. One of her friends who will be 11 soon has been tube fed all her life and in the last year has been starting to eat some pureed food.

desperateSCOUSEwife · 12/09/2006 14:14

thanx twoshoes
xxx

mrs2shoes · 12/09/2006 14:17

it's funny how I am the wrong way round.
ddsn eats really well
ds nt is terrible.
I think it is because when he was little and going through the "i hate that" stage I was so caught up in the drama that was dd he didn't get the attention he should have.

redbull · 12/09/2006 14:42

i must admit when i did this thread yesterday had the devil in me i stopped smoking yesterday so was feeling VERY EDGEY!! Everyones safe to day as ive been to the doctors and am on nicorette inhaler!!
But i have to say im so happy i did this thread we are all sharing storys with out most now saying YOU BAD MOTHERS!!!!!
Within our house once a week me and dp try something new with ds even if hes had it before but hated it we leave it a while then retry if he dont want non thata fine got another meal ready on standby!! So tonight its spagbowl he LOVES the garlic bread but not the spagbowl so if he wont eat it he will proberbly have some ham, cheese and the garlic bread on a plate and NOT TOUCHING!!!!!!!

OP posts:
Piffle · 12/09/2006 16:57

Redbull really WELL DONE on giving up the evil weed
I'm 6 years on from it - I experienced a constant cold for about 4 months but since then have been heathier and richer And I smell a whole load better

Mercy · 12/09/2006 17:15

Agree with Quadrophenia - not aggressive at all, if anything I've found it really interesting.

My ds(NT) has been an appalling eater for a year now, and is now down to a handful of things that he will eat. I don't like food being wasted, I don't like having to cook 2 or 3 separate meals most days but most of all I don't like the episodes of rising panic when I think about his physical & mental well-being.

This thread has reassured me that children can thrive on very limited amounts and ranges of food.

I am aware though that as my ds is only 2.5 it's almost certainly a (very protracted) phase that he will grow out of and we can deal with it.

I know for those of you who have children with SN that's probably not going to happen

Pixel · 12/09/2006 18:01

I'm heartily sick of the daily struggle to clean ds's teeth but I haven't given up (yet!) although he is rapidly getting to the stage where he is too strong for me and dh has to help. We've tried electric toothbrushes and different toothpastes but to no avail but just recently he has got much worse. The school nurse referred him to the community dentist as I had given up taking him to our dentist who had never once seen inside his mouth - complete waste of everyone's time. Well, community dentist actually managed to get a look! I was in the chair with ds on my lap in a vice-like grip and an assistant holding his head. When he opened his mouth to shout the dentist very bravely stuck her finger in so he couldn't shut it again. It was quite comical really with us all huffing and puffing and red in the face just to get a glimpse of a six year old's teeth. The reason he has suddenly got more sensitive in his mouth turned out to be because he is teething at the back and he also has loads of cavities . He's now on the waiting list to have a GA at the childrens' hospital which I'm dreading.

As for JO I put a message on the forum on his website last year explaining ds's eating issues and asking for any suggestions for recipes to try. People didn't even read the post properly and I just got the usual suggestions for hiding veg in shepherds pie as if I hadn't thought of that (and as if ds would touch sheperds pie!)or in pasta sauce when I had already explained that he won't touch pasta or anything 'wet'. You'd think posters on JO's website would be a bit more imaginative wouldn't you?

Chocol8 · 12/09/2006 18:13

Wow, it took me ages to read all of this thread, but glad i did. Kind of a relief that other Mums have these problems too! Ds will only eat a small range of food, but now a days these can include:

tomatoes (firm, unblemished) with lots of black pepper on
lettuce/raw spinach (with black pepper)
spring onions (has had only once, but liked)
pasta until it comes out of his ears (preferably plain but with passatta occasionally and pepper)
lasagne (but going off this now)
margherita pizza (with pepper)
chocolate mousse
shreddies and full fat milk
half tap water/half fizzy flavoured water
ribena juice
ham and cheese rolls (with obligatory black pepper)
McDonalds plain cheese burgers with chips - but he'll test each chip individually to make sure they are not crispy, or will reject them.

When he was younger, i insisted that he visit a dietitian as his diet only consisted of pasta and yoghurt, but she said he was growing so nothing to worry about. At the time he wouldn't drink anything so i took to mixing water in with the yoghurt and spoonfeeding him water. She did give me the bit about "some mothers come in here and their kids are climbing the walls and all they feed them is McDs/BK or KFCs".

He is 9 next week and only just weighs 4 stone, but is 4' 5" tall - so i guess pasta wasn't so bad for him after all. He still hates to use a knife and fork (sensory probs with metal) preferring to eat with his fingers, but at school i don't think the dinnertime staff would know he is AS/ADHD.

Tbh, I know alot of NT children who eat worse than him, so am not ashamed that his lunchbox contains the same things, day in, day out. He eats it (though it can take him an hour) and that in itself is enough to make me happy.

Good luck with the no smoking Redbull!

PeachyClairHasBadHair · 12/09/2006 18:22

What is it about unblemished stuff? Sam will gladly reject anything imperfect even if it is invisible to me, and he has taught ds2 to do the same sadly.

Tiggiwinkle · 12/09/2006 18:27

Same here Peachy-DS will not eat anything with a mark or blemish on it. He also checks sell-by dates meticulously!